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Celiac Disease And Pots?


jangle
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Lately I've noticed I feel more lightheaded after eating foods with cheeses. (Although still not sure if this is related only to the volume of food) aka superbowl weekend large pizza = sad Jangle.

Anyways, I've had my IgG antibodies screened and they were negative. So it is unlikely (though still possible) that I have celiac disease. I'd rather not go through the hassles of a gluten free diet if it won't do anything for me, I was wondering if anyone has any success with a gluten free diet and if they have any knowledge about celiac disease causing POTS?

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I do better without gluten. My "IBS" was caused by gluten. I still have POTS related tummy trouble but going off of gluten has improved many symptoms for me. I also have less pain and headaches. Now that I no longer eat gluten I have no trouble with dairy. When you have a gluten problem it can make dairy a problem - but this gets better for most after your system heals.

At first the gluten thing was hard- there is a learning curve and you miss some foods. Now I am no longer tempted when my family eats Dominoes!! When I think about it stomach problems were an issue for me when I first got sick. I also had trouble keeping weight on. You could try it for a few weeks and see if it helps you. Celiac can cause all kinds of problems. My initial test was also negative. True celiac is partially an inherited problem. I had genetic testing done. I have the gene for Celiac and one associated with gluten intolerance.

I feel better off of gluten ... you may also! It has been less then 2 years for me but now if I eat gluten I know it :(

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Pizza is also often covered in cheap meats that all contain large amounts of nitrates which readily convert to nitric oxide and potentially increase vasodilation or perhaps NO activation.

But it was the superbowl man - you had to do it!

Cheese by the way would indicate lactose intolerance - or perhaps you are sensitive to the tyramine in cheese (precursor and stimulant of release of norepinephrine)

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I do better without gluten. My "IBS" was caused by gluten. I still have POTS related tummy trouble but going off of gluten has improved many symptoms for me. I also have less pain and headaches. Now that I no longer eat gluten I have no trouble with dairy. When you have a gluten problem it can make dairy a problem - but this gets better for most after your system heals.

At first the gluten thing was hard- there is a learning curve and you miss some foods. Now I am no longer tempted when my family eats Dominoes!! When I think about it stomach problems were an issue for me when I first got sick. I also had trouble keeping weight on. You could try it for a few weeks and see if it helps you. Celiac can cause all kinds of problems. My initial test was also negative. True celiac is partially an inherited problem. I had genetic testing done. I have the gene for Celiac and one associated with gluten intolerance.

I feel better off of gluten ... you may also! It has been less then 2 years for me but now if I eat gluten I know it :(

So it's possible to be

I got IBS from pastry. But ive tried various diets for my health problems. All improve me at first and then work less eventually (no dairy, gluten free, sugar free, vegan, etc). Low starch is my next interest but I am weak!

Pretty much every breakfast item contains starch. You'd almost have to just skip breakfast.

kayjay your igG test was negative? I think I read somewhere that that detects celiac disease for up to 85% of celiac patients.

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I have scent sensitivities too and have found one perfume that I can use that doesn't give me a headache. You might try others and see what they do for you. It just might be that one. Like I said - I love the Jovan Musk and my hubby wears it for me - and it doesn't bother me either. Can you go to the counters and try out things before you buy them where you are?

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Sense of smell... I can wear scented lotions, but usually NOT perfume. I have an unbelievable reaction, especially to strong chemicals...good thing, too, because my husband had NO sense of smell, so if the house is burning down, I will save the family....lol... Seriously, when I had my MRA, the dye heightened my sense of smell 10 fold!! The guy that was doing my test had on cologne that smelled nice, but I was extremely hypersensitive after the dye was injected...strange sensation, I'm telling you!! Weird :blink: I guess I am not even on the topic. I do have GI issues, but I don't yet know what triggers them...everything in moderation right now :) Yogurt helps!

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I don't know what test ... sorry. I really was too sick to care at the time. Gluten was an afterthought. I had testing done though an independent lab and the American Red Cross does the genetic testing. The biopsy is currently the best way to get a diagnosis. These too can sometimes give a false negative.

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Most of my me/cfs symptoms are gone now and most, if not all my neuro problems were from gluten.

caffeine did a number to me too tho. It kept my heart and adrenals racing for hours ..

From what I've read, The testing for celac disease isn't reliable.. Which is why the trend now is to go gf and see how you feel. "Theglutenfile" explains this and can give you an idea of what gluten can do ..

My understanding is that the stool test is the most reliable. I believe it since even my gluten antibodies were normal after I'd gone gf but was eating quite a bit if those "gf" processed foods. And my stool test says I have antibodies everytime still ..

There are quite a few of us here that are gf .. tc .. D

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I found that going glutten free has almost reversed my neuropathy. I was having it real bad in my feet/legs and hands and now hardly notice it. I did not test positive to celiac and not even positive on alternative testing - but, I am sensitive to it and do believe it was one of the exasberaters of my neuropathy. Being off of dairy has been a big help too. People with MS type symptoms do better dairy free and if there is an autoimmune component - not a bad idea, to try.

Issie

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Imho, One simple way to try this if you don't want to give up grains is to simply replace your current grain

with gf ones. They're easy to find nowadays. At least in the us ..

If you google gf, you'll get an idea

what's available. The only problem is that some gf foods are tasteless so it helps to know which ones to

avoid. You couldn't pay me to eat energy bread .. Or that pecan one ..

Homemade gf foods will knock your socks off tho .. Lol .. We usually have homemade gf foods at

My celiac support group mtgs.

I heard udi's bread is good. Tinkyada brown rice pasta is supposed to be the best. Boar's head meats are gf but there are other ready to eat meats that are too.

Many restaurants have gf options too. Chilis, outback, Olive garden, etc .. Tc .. D

Ps. There isn't a standard for the amount of gluten allowed in "gf" foods in the us yet so these foods are typically cross contaminated. Some

people can handle a little gluten and some can't.

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Is subway gluten free? They have like 5 dollar subs I've been living off those for lunch and dinner XD

No, sorry. Wheat, oats, rye and barley are the grains that you have to avoid to be gluten free. It is really hard - but, can be done. If you like subway - get the salads and not the bread. I don't know about the meats if there are fillers - but, I can do the meats - just have it in salad form - no crackers. If there is a Trader Joes near you they have their brand of Rice Bread and it's a little dry, but not too bad for sandwiches. Also, they have a brown rice tortilla and spaghetti noodle that is good.

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I had MS like symptoms and thought I had it for years; I don't eat ice cream anymore, or drink milk, but I love cheese...that is my weakness. I don't eat it as much as I used to. I don't think any of my testing pointed to autoimmune diseases, but I do have asthma. I'll keep that in mind...thanks Issie

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I had MS like symptoms and thought I had it for years; I don't eat ice cream anymore, or drink milk, but I love cheese...that is my weakness. I don't eat it as much as I used to. I don't think any of my testing pointed to autoimmune diseases, but I do have asthma. I'll keep that in mind...thanks Issie

You might want to stay on your magenesium too - that would help with MS too. It's just that neuro-magnesium I was warning against. Magnesium can lower your bp though - so if you have low bp's be careful of magnesium.

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Thanks...I asked my neuro about the magnesium lowering my B/P, and he said it shouldn't be a problem for me, but I'm still concerned about my left kidney, so I'll ask my internist about this :) I may end up going to a kidney specialist. Like I need another doctor appointment :huh:

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