Brye Posted February 4, 2012 Report Share Posted February 4, 2012 I have a pacemaker surgery for February 16th. My HR seems to be getting slower and slower and cutting back on my beta blocker didn't go well. It's been dropping in the low 30's and staying there. Hope it's the right decision. My cardologist is hopeful it will help at least some of my symptoms. I'll let you all know if it helps! Brye Quote Link to comment Share on other sites More sharing options...
issie Posted February 4, 2012 Report Share Posted February 4, 2012 I hope it goes well for you and you regain some of your health. Keep us posted. It has helped some and I'm sure they will chime in here.Issie Quote Link to comment Share on other sites More sharing options...
Lemons2lemonade Posted February 4, 2012 Report Share Posted February 4, 2012 Good luck brye, sending love and prayers! Quote Link to comment Share on other sites More sharing options...
goldicedance1 Posted February 4, 2012 Report Share Posted February 4, 2012 First, Brye, good luck on your upcoming pacer implantation. I have had pacer(s) since 1996. I just got my newest on October 31. Do you know what kind --i.e., brand--you are receiving? I strongly recommend you discuss this with you EP before the scheduled surgery. The Biotronik-- the only one in the world -- can make changes in heart rate in response to changes in the autonomic nervous system. Dr. Grubb has been using this pacer on some of his POTS patients for a few years. My EP at the Mayo in Jacksonville has also been using it on his patients. The latest model is the Evia DT.I would be sure that your doctor explains to you why this model is not appropriate for you given your need for a pacer coupled with your POTS.After a follow-up visit with Dr. Grubb in 2010, he wanted me to have my pacer changer then to this new type of pacer. But, since my current device, still had a couple years remaining, my Mayo doctor was concerned about the risk of infection every time you have surgery. Therefore, I decided to wait until my current pacer needed replacing.The pacer recommended by Dr. Grubb is a Biotronik Evia DR-T. It requires a doctor who is skillful in making the various adjustments to tweak it to your situation. So far, I have had 2 adjustments done and am feeling much better. My specialist has been in contact with Dr. Grubb about the best settings. Dr. Grubb has even published an article in an EP journal about the Biotronik Closed Loop Monitoring system and its adjustments for autonomic system dysfunction.Google BiotronikI would be sure to speak with your doctor to be sure you are getting the best pace maker for your condition. I have bradycardia (brought on my a sinus node ablation in 1993 when they couldn't figure out what was causing my tachycardia and POTS was not as "well-known as it is today." I also am totally pacer dependent due to an AV node ablation due to junctional tachycardia.The BiotroniK Evia (and its Cylos) is also the only pacer that monitors your pacer every night to be sure that it is functioning properly. I have a little device on my nightstand. I don't have to do anything. Everynight this device checks my pacer and is able to tell if it and my heart are working properly. If it detects something out of sort, it sends an alert immediately to my doctor. Every week, it sends a weekly recap to my doctor telling him that everything is working well. Gives me a bit of assurance.Please feel free to get in touch if you would like some more information. Quote Link to comment Share on other sites More sharing options...
Katybug Posted February 5, 2012 Report Share Posted February 5, 2012 Brye,Best wishes for a speedy recovery after the surgery and that it does the trick!Katie Quote Link to comment Share on other sites More sharing options...
rubytuesday Posted February 6, 2012 Report Share Posted February 6, 2012 Hope this will leave you feeling much better. Best wishes for a speedy recovery. Quote Link to comment Share on other sites More sharing options...
brethor9 Posted February 6, 2012 Report Share Posted February 6, 2012 Good luck Brye!! HugsBren Quote Link to comment Share on other sites More sharing options...
corina Posted February 6, 2012 Report Share Posted February 6, 2012 good luck on your surgery brye, hope things will go well for you! Quote Link to comment Share on other sites More sharing options...
sue1234 Posted February 6, 2012 Report Share Posted February 6, 2012 Good luck, Brye! Quote Link to comment Share on other sites More sharing options...
Brye Posted February 7, 2012 Author Report Share Posted February 7, 2012 Thanks for all the pacemaker advice and good wishes. Appreciate you all!!Brye Quote Link to comment Share on other sites More sharing options...
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