Maiysa Posted February 1, 2012 Report Share Posted February 1, 2012 I've literally been sick since December 27th with flushing and nausea, my blood pressure stayed at 146/92 for days and HR of 116 for several nights which ended up being from my period and then a 2 week upper respiratory virus followed and then of course the anemia set in which makes the dysautonomia somewhat of a nightmare and then a few weeks later, another period. I pray for them to go away. Anyhow, I lived. Wahoo! And thanks to some of the girls sending me to the mast cell blog and posting there, I found a doctor in the southwest to at least be able to rule out mast cell activation disorder. Not sure I have it, but my tryptase was 11 which my local doc told me it was nothing to worry about, but my girls here said to have it looked at-so I'm going to do it. So happy to find someone local. IT's a miracle. I usually have to go somewhere else. Of course I have a 4 month wait, haha.... but they have me seeing a hematologist first and that's in March. So that's only a month away, so it's good. Okay, good health to all. Maiysa Quote Link to comment Share on other sites More sharing options...
puppylove Posted February 1, 2012 Report Share Posted February 1, 2012 That's great that you found one in your area!! I hope it all goes well for you! Quote Link to comment Share on other sites More sharing options...
anaphylaxing Posted February 1, 2012 Report Share Posted February 1, 2012 SO happy there's some progress Maiysa!! Quote Link to comment Share on other sites More sharing options...
Maiysa Posted February 1, 2012 Author Report Share Posted February 1, 2012 Thank you Puppylove and Anaphylaxing! Quote Link to comment Share on other sites More sharing options...
POTSMama Posted February 1, 2012 Report Share Posted February 1, 2012 Hurray Maiysa! Hopefully they will figure out what's going on, and if it's MCAD, get you on the right meds - - or treat whatever is going on to make you so sick. I am still not great, but much improved over how I was a month ago now that I'm on MCAD meds (don't have a firm diagnosis yet from the doctors, but it sure fits my symptoms), so hang in there and stay hopeful. Let us know how it goes! Quote Link to comment Share on other sites More sharing options...
Katybug Posted February 1, 2012 Report Share Posted February 1, 2012 Great, Maiysa!! It's always a relief to even find a doc let alone 2!! Good thoughts are being sent your way! Quote Link to comment Share on other sites More sharing options...
Maiysa Posted February 2, 2012 Author Report Share Posted February 2, 2012 Thank you Potsmama and Katybug. Potsmama, I can't remember, did you find a doctor or are you waiting on an appointment? Katybug, did they put you on some meds for the possible MCAD? If so do you notice a difference. I know you're having all sorts of tests right now. When will you know something? Quote Link to comment Share on other sites More sharing options...
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