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I Found A Doctor In The Southwest To Test For Mast Cell. Yay!!


Maiysa
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I've literally been sick since December 27th with flushing and nausea, my blood pressure stayed at 146/92 for days and HR of 116 for several nights which ended up being from my period and then a 2 week upper respiratory virus followed and then of course the anemia set in which makes the dysautonomia somewhat of a nightmare and then a few weeks later, another period. I pray for them to go away. Anyhow, I lived. Wahoo! And thanks to some of the girls sending me to the mast cell blog and posting there, I found a doctor in the southwest to at least be able to rule out mast cell activation disorder. Not sure I have it, but my tryptase was 11 which my local doc told me it was nothing to worry about, but my girls here said to have it looked at-so I'm going to do it. So happy to find someone local. IT's a miracle. I usually have to go somewhere else. Of course I have a 4 month wait, haha.... but they have me seeing a hematologist first and that's in March. So that's only a month away, so it's good. Okay, good health to all.

Maiysa

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That's great that you found one in your area!! I hope it all goes well for you! :)

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Hurray Maiysa! :) Hopefully they will figure out what's going on, and if it's MCAD, get you on the right meds - - or treat whatever is going on to make you so sick. I am still not great, but much improved over how I was a month ago now that I'm on MCAD meds (don't have a firm diagnosis yet from the doctors, but it sure fits my symptoms), so hang in there and stay hopeful. Let us know how it goes!

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Thank you Potsmama and Katybug. Potsmama, I can't remember, did you find a doctor or are you waiting on an appointment? Katybug, did they put you on some meds for the possible MCAD? If so do you notice a difference. I know you're having all sorts of tests right now. When will you know something?

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