derekliz Posted January 31, 2012 Report Share Posted January 31, 2012 I was diagnosed with Raynaud's today. And rec'd my second opionion/pots diagnosis in Dec 2011. I currently take 25 mg metoprolol succinate, zoloft 25mg, klonopin .5 mg, sodium chloride 3gms a day (gradually increasing), ubiquinol 50mg, fish oil with vitamin d3, red marine algae, olive leaf extract and magnesium citrate 800 mg.I have read where metoprolol can aggrivate Raynaud's and should not be taken. I have a call and email into my pots specialist to see what they say.I had my tsh, free t3, free t4, ferritin, tibc, vitamin d, cbc and metabolic panel checked last week and hope to have results tomorrow. I do not pass out or have low bp. My standing norepinephrine the 45 min TTT was in the 800's. I have 2 small 5mm hypoechoic thyroid nodules that are being re-scanned via U/S at the end of next month.Would love to hear from those who have both pots and raynaud's to see what work for youThanks so much!Liz Quote Link to comment Share on other sites More sharing options...
derekliz Posted January 31, 2012 Author Report Share Posted January 31, 2012 My feet literally feel like they are in a bowl of ice water!! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted January 31, 2012 Report Share Posted January 31, 2012 tough one as POTS can cause a type of reflex raynauds but only orthostatically. some of the tratments for POTS are supposed to make raynauds worse and vice versa. I know that a few POTS meds did nothing for me OTHER than giving me raynauds. Quote Link to comment Share on other sites More sharing options...
songcanary Posted January 31, 2012 Report Share Posted January 31, 2012 The only thing that helps me is prevention. I wear socks and even gloves when other folks are in T shirts and flip flops. My rheumatologist concurred and did not recommend any drug therapy. Maybe others have better solutions. I just try to keep from getting cold in the first place. It does not do a thing for fashion! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted January 31, 2012 Report Share Posted January 31, 2012 Porbably the best way to go because the raynauds that occurs in POTS is often related to reflex mechanisms resulting from abnormal blood flow elsewhere. Quote Link to comment Share on other sites More sharing options...
janiedelite Posted January 31, 2012 Report Share Posted January 31, 2012 If I can control my POTS symptoms as much as possible, I notice I have less problem with peripheral vasoconstriction. For me, compression hose actually reduced the pernio I suffer from. Also, lots of salt and fluids. Of course I also have Smartwool and Acorn socks (sometimes 3 pairs over my hose). When my feet are freezing, going for a walk helps get circulation back in. I can't warm my feet too quickly (ie in hot water or a heating pad) or I get chilblains. But sometimes I tuck them under one of my sleeping, large dogs for some nice warmth! Quote Link to comment Share on other sites More sharing options...
lillybits Posted February 1, 2012 Report Share Posted February 1, 2012 i was switched to norvask it helps some but other than that i sit on my hands and feet, have to keep my ears covered anytime it gets cold, put hand warmers in my shoes and gloves, and then my regular pots rutine . It sometimes seems to help by shaking out my hands. it gets worse when its cold out side or if i get stressed or sick Quote Link to comment Share on other sites More sharing options...
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