RichGotsPots Posted January 30, 2012 Report Share Posted January 30, 2012 Interesting video from POTS researcher I'm wondering now if our hypoperfusion is responsible for our symptoms rather than regional blood pressure that I once thought or maybe both..Only problem is that my main symptom is breathing problems as many already know and there is hardly any research of pulmonary hypoperfusion except in infants. But there is some research on cerebral hypoperfusion, for those of you have have cerebral symptoms... Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted January 30, 2012 Report Share Posted January 30, 2012 Yeah its all about changes in blood flow - hyperemia in some areas, relative hypovolumia in others. Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted January 30, 2012 Author Report Share Posted January 30, 2012 This 4th video shows that the thorax does down 30% while the splanchnic area goes up 30%. This has to be contributing to my pulmonary problems. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted January 30, 2012 Report Share Posted January 30, 2012 Yeah I doubt it would be helping them mate Makes it tough for the heart and the liver as well. Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted February 1, 2012 Report Share Posted February 1, 2012 Thanks for posting this. This explains exactly what's happening in our bodies when we're upright. Imho, this should have a sticky. My other me/cfs symptoms (ataxia, constant brainfog, brain zaps, digestive problems, etc) are undercontrol via diet (food intolerance, low carb, low glycemic and toxin elimination). It's only when I'm upright that I feel weak, fuzzy headed, sob, etc ... Just like he points out. I have a left bundle branch block, aka ticker problem, that my cardiologist says isn't bad enoughto cause my oi. BUT .. I've never had a standing ekg. Do they even do this ? I was however booted off the treadmill butI was too sick to follow up and ask why .. I'm going to try supine exercises once again to see if it helps. I stopped the last time becauseI went to pt for assistance and ended up doing too much and in a chronic pem (post exertionalmalaise) state .. Tc .. D Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted February 2, 2012 Author Report Share Posted February 2, 2012 Yeah I doubt it would be helping them mate Makes it tough for the heart and the liver as well.I had my POTS doc do this test and he used a machine called a BioZ but he barely knew how to read the results only that cardiac output went down on standing. I wish on top of the research for this they would point out some meds to try for this and success rates. I've seen that info on Dr. Grubb's studies.. Just not in this area.. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted February 3, 2012 Report Share Posted February 3, 2012 Most of us have reduced stroke volume from low blood supply. Quote Link to comment Share on other sites More sharing options...
McBlonde Posted February 3, 2012 Report Share Posted February 3, 2012 I feel so dehydrated and scared. I have had plenty of Gatorade today. I took a bath and washed my hair last night and I woke up feeling like death warmed over. I just don't know what to do anymore. Quote Link to comment Share on other sites More sharing options...
issie Posted February 3, 2012 Report Share Posted February 3, 2012 I feel so dehydrated and scared. I have had plenty of Gatorade today. I took a bath and washed my hair last night and I woke up feeling like death warmed over. I just don't know what to do anymore.Hang in there and take it one day at a time - sometimes, it may be one minute at a time. (((((Hugs - to you))))))Issie Quote Link to comment Share on other sites More sharing options...
McBlonde Posted February 3, 2012 Report Share Posted February 3, 2012 I feel so dehydrated and scared. I have had plenty of Gatorade today. I took a bath and washed my hair last night and I woke up feeling like death warmed over. I just don't know what to do anymore.Hang in there and take it one day at a time - sometimes, it may be one minute at a time. (((((Hugs - to you))))))IssieI appreciate that so much Issie! Sorry, I didn't mean to hijack the thread..... I'm now able to roll over and type, so that's an improvement, The only thing I can think of is I took a bath AND washed my hair last night. Maybe this is the aftermath of that.... it's all so crazy! Quote Link to comment Share on other sites More sharing options...
issie Posted February 3, 2012 Report Share Posted February 3, 2012 I have that happen sometimes too. I have to sit to shower and wash my hair and by the time I'm finished - I'm shaking like a leaf and nauseous and totally wiped out. I have to make sure I don't get the water too hot and also do my hair in stages - because using my arms overhead will get me. Hope tomorrow is better for you.Issie Quote Link to comment Share on other sites More sharing options...
McBlonde Posted February 3, 2012 Report Share Posted February 3, 2012 I have that happen sometimes too. I have to sit to shower and wash my hair and by the time I'm finished - I'm shaking like a leaf and nauseous and totally wiped out. I have to make sure I don't get the water too hot and also do my hair in stages - because using my arms overhead will get me. Hope tomorrow is better for you.IssieYes! I don't know what got into me to do both. I know better. You would think after 9 years I would have learned wouldn't you?! Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted February 3, 2012 Author Report Share Posted February 3, 2012 I have that happen sometimes too. I have to sit to shower and wash my hair and by the time I'm finished - I'm shaking like a leaf and nauseous and totally wiped out. I have to make sure I don't get the water too hot and also do my hair in stages - because using my arms overhead will get me. Hope tomorrow is better for you.IssieYes! I don't know what got into me to do both. I know better. You would think after 9 years I would have learned wouldn't you?! Must have been the bath. Heat is a vasodialator.Also it can dehydrate by raising our temperature... I stopped taking warm showers and baths.. Quote Link to comment Share on other sites More sharing options...
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