lissy Posted January 20, 2012 Report Posted January 20, 2012 Hey all,Awhile back I posted about abdominal pains/ cysts on ovary and this weird lung,chest pain with my cycle. Well guess what a recent ultrasound discovered blood in my ovary and elevated c125 only 45 but still doctor said cancer is not likely the problem but endometerosis is!!!! Finally a answer to my menses problems.Now I'm worried about the upcoming surgery, I have never had surgery and with the POTS problems it worries me more so suggestions greatly appreciated. I do have an appointment with my cardio on Monday so I'm sure he'll have some advice for me but to those that have had surgery and hysterectomy's after having this condition I'd love to hear from you.Has anyone gotten better or relief from hyster or ovary removal?Thanks,Lissy Quote
kayjay Posted January 21, 2012 Report Posted January 21, 2012 I have endometerosis and had laproscopic surgery. I was on a beta blocker at the time. I have had surgery 3 times with pots and worried each time. No problems and one surgery was fairly long. I have not had anything removed but I was put on a hormone pill. it was called Kariva- some of the newer pills are horrible for us ( YAZ really made me sick), but maybe a pill that has been around longer would be safe and helpful for you. If you have a hysterectomy you may have to deal with menopause issues and you are quite young. I don't know your exact situation but I would be hesitant to have a hysterectomy.They removed a cyst from my ovary- went in though my belly button and got rid of all of the endo that they could. The doctor wanted to show me the pictures !!! gross. If you want to PM me feel free and I can tell you what I know ( not much ) Quote
lissy Posted January 21, 2012 Author Report Posted January 21, 2012 Thanks Kayjay I tried to message you and says you can't accept messages. Quote
Rachel Posted January 22, 2012 Report Posted January 22, 2012 Paona just posted this article in another topic, and I wanted to post it here too in case you didn't see it. Anesthetic Consideration In A Patient With Postural Orthostatic Tachycardia Syndrome http://www.ispub.com...a-syndrome.htmlIf you don't get many replies here, you may find some of the posts in Paona's current topic helpful. http://forums.dinet....191#entry175191You might also find some more information by doing a search. I know that surgery has been discussed many times here before. Quote
lissy Posted February 5, 2012 Author Report Posted February 5, 2012 Surgery set for FEB.28th having hysterectomy leaving one ovary if possible. I guess I wanted to know if most of my symptoms are made worse by my cycle is it possible to become better from this surgery? Hopefully it helps, I'm very nervous! Quote
corina Posted February 5, 2012 Report Posted February 5, 2012 lissy, i don't think it will cure you but your symptoms might improve from not getting your period anymore. best wishes on your surgery! Quote
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