CFS/OI Article By Dr. Bell

[Sophia3]

Titled, No Other Illness Like This One

This article is several years old but I am happy to rediscover it online.

It was too long to cut and paste and take up space here, but I must warn you. The text is white on a black background (NOT VIEWER FRIENDLY) So what I did was cut and pasted the article and EMAILED myself for easier viewing.

Dr. Streeten-mentioned in the article-- has sinced passed away and was an autonomic specialist. He worked closely with the founder of NDRF.

http://www.geocities.com/vitamvas/cfidsnews.html

[Ernie]

Thanks Sophia for the nice document. It's the first time I read it. I found it interesting and refreshing.

Ernie

[briarrose]

Thanks for this post.

It was an interesting rewrite on some of their work together but always good to hear. Here are some of their original papers, more rewrites & additional works. Dr. Bell also writes news letters and puts them out, I've attached a few.

I had an appointment to see Dr. Bell 3 years ago in NY, but didn't need to go because Dr. Grubb answered all of my questions and has been able to help me with most of my problems.

http://www.ncf-net.org/library/Bell.htm

Circulating Blood Volume in Chronic Fatigue Syndrome

David H. P. Streeten, MB, DPhil, FRCP, FACP David S. Be11, MD, FAAP

http://web.tampabay.rr.com/lymecfs/hypovolemia.htm

http://www.anapsid.org/cnd/diagnosis/hypovolemia.html

Hypovolemia and CFIDS

http://www.anapsid.org/cnd/diagnosis/hypovolemia.html

National CFIDS Foundation, Vol. 2, No. 2, Fall 1997

http://www.ncf-net.org/forum/restheory.html

DR. BELL'S NEW RESEARCH BASED THEORIES

http://www.ncchem.com/cfids_new.htm

CFIDS New Mechanism Found, Treatment Tried

http://www.pediatricnetwork.org/medical/CF...dvolstudies.htm

The Lyndonville Journal:

Evaluating Blood Volume Studies - Some Thoughts

David S. Bell, MD, FAAP

Published in Lyndonville News, March 2000

http://www.cfids-cab.org/cfs-inform/Coicfs...procedure00.txt

Exact Procedures for Bell/Streeten Orthostatic

http://www.davidsbell.com/PrintLynNewsV1N3.htm

Lyndonville News

Information and Support for the ME/CFS/FM Community

David S. Bell MD, FAAP, Editor

www.DavidSBell.com

Volume 1, Number 3: October 2004

[Sophia3]

The reason I posted this older article from around 1996, is because it was the FIRST TO SHOW A LINK with autonomic problems and CFS or CFIDS (outside of the CFIDS Chronicle and Johns Hopkins study) It was PROOF there was documentation for many with CFS/CFID (via tilt table testing)

Also, Dr. Streeten didn't realize he was studying CFS pts and that he and Bell were on similar pages, for years. Sadly, Streeten came out of retirement to try and tie the autonomic and CFS connections together since he had written books on autonomic problems YEARS ago. He was a great autonomic doc and is sadly missed.

I enjoyed his speech in the NDRF conference tapes...what a sweet old guy....I loved how he mentioned "if you can't stand in line, it's tough to get around in this world" or something to that affect. He really GOT the O.I.

They didn't call him the father of dysautonomia for nothing!!!

Also, it was easier for people not into technical medical jargon to read and understand and for family members.

I had kept it bookmarked for years but it got taken off it's original site years ago.

I also always loved the title for it really is a unique "invisible" illness.

Thanks

S

Titled, No Other Illness Like This One

This article is several years old but I am happy to rediscover it online.

It was too long to cut and paste and take up space here, but I must warn you. The text is white on a black background (NOT VIEWER FRIENDLY) So what I did was cut and pasted the article and EMAILED myself for easier viewing.

Dr. Streeten-mentioned in the article-- has sinced passed away and was an autonomic specialist. He worked closely with the founder of NDRF.

http://www.geocities.com/vitamvas/cfidsnews.html

<{POST_SNAPBACK}>

[walstib9]

THIS WAS ME! Not so much the social but the NOT trying to participate and NOTE that no matter what....we pocessed others strengths to keep a truckin'.

Depression and Anxiety in Adolescent CFS, FM and OI

"adolescent girls with CFS showed strengths such as adequate self-esteem

and scholastic and social abilities, and weaknesses such as low competence in

adolescent-specific tasks and internalizing distress, which may partly be

explained by syndrome-specific somatic complaints." ~ van Middendorp et al

Anxiety and depression may be experienced as a result of the disbelief, hurtful

comments, loss of socialization time and learning difficulties faced by kids

with chronic illnesses such as Chronic Fatigue Syndrome (CFS), Fibromyalgia

(FM), and Orthostatic Intolerance (OI). Losing the ability to participate in

activities that helped define an adolescent's self-image, seeing friends drift

away, being teased by disbelieving peers, and facing the possibility that

medical treatments will not help can be very difficult. Adolescents may be

frustrated by their inability to push through their symptoms and achieve in the

same ways they did when they were healthy. They may be deeply upset by the

possibility that they may not recover. There are many issues for them to face

and come to terms with prior to and immediately after a diagnosis.

It is also thought that depression and anxiety may occur as part of the

neuroendocrine changes that are part of CFS and FM. For example, anxiety may be

triggered by the surges of catecholamines that occur during presyncope and

orthostatic tachycardia, common experiences for youth with CFS and forms of

orthostatic intolerance such as neurally mediated hypotension (NMH) or postural

orthostatic tachycardia syndrome (POTS).

It is often possible to differentiate between CFS, FM, and major depressive

disorder. A comparison of adolescents with CFS and adolescents with depression

finds higher self-esteem and feelings of self-efficacy in those with CFS. In

addition, adolescent CFS subjects have less depressive symptoms and antisocial

behavior than do their peers with major depression (Carter, 1995; Carter, 1996).

Characteristics such as life changes, cognitive difficulties, negative

self-attributions, social relationship disruption, and somatic symptom

presentation may also be used to differentiate between idiopathic chronic

fatigue (ICF), depression, and controls (Carter, 1996).

The area of overlap between adolescent CFS and adolescent depression that has

received the most attention is the internalization of distress. Three studies of

adolescent girls with CFS (Pelcovitz, 1995; Carter, 1999; van Middendorp, 2001)

and one study of adolescents with several months of idiopathic chronic fatigue

(Carter, 1995) reported high scores on measures of internalizing. The evidence

of increased rates of depression in adolescent ICF (Smith, 1991; Carter, 1995b)

and CFS (Brace, 2000; E Garralda, 1999), and of anxiety in CFS (E Garralda,

1999), has added to interest in this area. However, researchers continue to

report that adolescents with CFS can be differentiated from those with major

depression.

Despite the challenges they face, adolescents with CFS have psychological

strengths that they draw upon. Normal achievement motivation, no unusual fear of

failure, high internal locus of control, and the use of palliative reaction

patterns are reported in adolescent CFS (van Middendorp, 2001). Normal

adjustment for psychosocial self-esteem and social abilities is is also found in

adolescent girls with CFS (van Middendorp, 2001; E Garralda, 1999). Total

competence is higher in CFS than in adolescent juvenile rheumatoid arthritis

(Brace, 2000). Syndrome-specific somatic complains and the impact of the loss of

socialization time may help explain low perceived competence in specific

adolescent domains for girls with CFS, such as athletics and romance (van

Middendorp, 2001).

The questions raised by comparing adolescent depression, CFS, and juvenile

rheumatoid arthritis are explored in this interview with Bryan Carter, PhD.