ramakentesh Posted November 23, 2011 Report Share Posted November 23, 2011 http://www.ncbi.nlm.nih.gov/pubmed/21947988I think its interesting that they define hyper POTS as either postural norepinephrine above 600 pg/ml or an increase in orthostatic systolic blood pressure of 10 mm Hg or more. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted November 23, 2011 Report Share Posted November 23, 2011 This goes back to what I said a few weeks ago. The dysautonomia centers keep putting out the same information over and over!! They need to be coming up with NEW research instead of going around and around the same merry-go-round. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted November 23, 2011 Author Report Share Posted November 23, 2011 Did you read the one that came out recently that told us that they had just demonstrated that the increased tachycardia in POTS is not caused by anxiety? What a breakthrough. I wish I could get funding for studies that demonstrate what has already been demonstrated and accepted by the wider medical community 15 years ago... Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted November 23, 2011 Author Report Share Posted November 23, 2011 Personally as far as research goes I only really read the stuff that comes out of Vandebilt and Stewart/Medows. I am also interested in the work from Japan or China on hydrogen sulfide and POTS. Otherwise I read the CFS research. Much of the POTS stuff is pretty unimpressive and after 15 years of studies and countless volumes of work published on the condition, thus far new treatment protocols have been very limited. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted November 23, 2011 Report Share Posted November 23, 2011 I know. But that is interesting that their study showed hyperPOTS patients only made up 10% of their POTS patients. Quote Link to comment Share on other sites More sharing options...
It'sMyLife Posted November 23, 2011 Report Share Posted November 23, 2011 I'm excited to see this article as I have Hyper POTS. Would anyone mind telling me how I can get my hands on a copy of the full article?? Thanks so much! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted November 23, 2011 Author Report Share Posted November 23, 2011 Apparently nearly ever patient on these forums has hyper pots... Quote Link to comment Share on other sites More sharing options...
L4UR3N Posted November 23, 2011 Report Share Posted November 23, 2011 Haha . There does seem to be a discrepancy between the percent of sufferers in the research and the amount found in this forum! Not sure if this is an error in research, a misdiagnosis, or just the fact that those with Hyperadrenergic POTS are less likely to be helped by "traditional" POTS medications, and therefore more likely to be found searching forums for answers.I was initially diagnosed by significant increase in BP with the TTT. Only recently have the measured my catecholamines. Still haven't found a medication to help, though I may give Methyldopa a go around. The side effects are pretty hair raising though... Quote Link to comment Share on other sites More sharing options...
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