IDreamInColor Posted November 21, 2011 Report Share Posted November 21, 2011 I've been bed ridden since the beginning of August, unable to do anything. But for the past 3 days I've been feeling like my old self again, aside from a few minor symptoms. I just finished cleaning my kitchen, including standing on chairs to wash windows, and I was fine. I went from a bazillion debilitating symtpoms and unable to stand up for more than ten minutes, to back to my old self overnight? Is it possible that I'm going to be ok? Or do you think this is just a bad joke and I'll go back to my bed tomorrow? I would hate to get my hopes up only to be shot down.Also, I am having a new symptoms, and wondering if anyone else is experiencing this. I am having a severe pain in my left temple. It only lasts a few minutes to an hour then goes away. Any idea what might be causing it? It feels to me like vein pain right in my temple. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted November 21, 2011 Report Share Posted November 21, 2011 So, I know you've tried a few new meds recently, haven't you? Which ones are you still on or which did you quit? Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted November 21, 2011 Report Share Posted November 21, 2011 Hi .. I've heard that people can recover spontaneously from me/cfs so I believe it could happen withthis too. That would be great .... I hope that happens ... Not to be a party pooper, but since you asked, I've felt totally healthy 3 times since 2006. The first time was 1 year afterchanging my diet. And the other two were after starting a new supplement (adb12 is the only one I can remember). All 3 instances lasted about 3 weeks then I went back to needing more rest, etc .. Whatever the case, I hope you enjoy it ... D Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted November 21, 2011 Report Share Posted November 21, 2011 Remissions are a pretty normal thing, live it up, enjoy your life and don't look back. Quote Link to comment Share on other sites More sharing options...
Katybug Posted November 22, 2011 Report Share Posted November 22, 2011 I agree with Todd...live it up and don't look back. Take each day as it comes and if there is a bad one, remember that there is always the possibility that the next day will be another good one. Quote Link to comment Share on other sites More sharing options...
songcanary Posted November 22, 2011 Report Share Posted November 22, 2011 The day I started drinking salt water I was washing walls within two hours. It was a revelation. But I still had symptoms and subsequently had a positive TTT. I have have a couple set backs since then, but over all I've seen slow improvement. So enjoy the ride and I agree with the other comments. Just don't be too disappointed if you fall back temporarily. This illness can be very cruel with its ups and downs. Quote Link to comment Share on other sites More sharing options...
derekliz Posted November 22, 2011 Report Share Posted November 22, 2011 I am sooooooooo happy for you! Hope that you continue to feel well Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted November 22, 2011 Report Share Posted November 22, 2011 Thats awesome! I went into remission-ish period for a year before I went back to my bad POTS. I still had to have naps before I went to an outing such as a movie or dinner, but I was able to do all the things I wanted to do...I worked part time, drove, went to the movies/mall/dinners ect. I even went tanning in the beds (wouldnt dare try that any day soon again). Just enjoy it! and remember just because mine came back, does not mean yours will. Mine only did because of my pregnancy being so hard on my body. Quote Link to comment Share on other sites More sharing options...
mwise Posted November 22, 2011 Report Share Posted November 22, 2011 Congratulations and as others have said, "Enjoy." Take each day as it comes. When I have a good day, I make the best of it. When I have a bad day, I make the most of that too. Stay positive because I know there are others with our disease in remission and enjoying life. As for us who are still symptomatic, hugs and love to you all. We will beat this and one day we will all be cured. Quote Link to comment Share on other sites More sharing options...
IDreamInColor Posted November 22, 2011 Author Report Share Posted November 22, 2011 Yep, it was nothing but a dirty joke. As evening progressed, the dizziness, nausea, legs jerking, headache, and lightheaded popped back in and said..."hey, did you miss me, here I am." And then it let out a very sarcastic laugh.I knew it was too good to be true. Guess I spoke too soon Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted November 22, 2011 Report Share Posted November 22, 2011 Dont give up hope!Usually when I have one good day, more follow. Tomorrow the same thing could happen. Did you do anything different today? (diff. meds, more water/salt ect?) Quote Link to comment Share on other sites More sharing options...
Frugalmama Posted November 22, 2011 Report Share Posted November 22, 2011 As others have said, the randomness of this illness is really amazing! I had one glorious day, almost two years ago, when I reached the point in my third pregnancy where morning sickness passed....and for whatever reason, I wasn't a POTSy that day . I literally cleaned the entire house with my daughter that morning, and my husband was stunned to come home at lunch and see me not on the couch . Take the good days as blessings, and I hope they become more and more frequent for you Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted November 22, 2011 Report Share Posted November 22, 2011 I can be fantastic one day and totally terrible the next. Wish I could peg down how to control these fluctuations. Normally when i relapse I go from all bad, to one or two good days in a fortnight, to one or two good days in a week, to eventually mainly good days and one or two badies a week. Quote Link to comment Share on other sites More sharing options...
julieph85 Posted November 22, 2011 Report Share Posted November 22, 2011 In reference to your headache- I have had headaches in my temples for the last 3 weeks. It has been so weird and i've never had anything like it. It feels just like you describe, likes it coming from a vein there. Quote Link to comment Share on other sites More sharing options...
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