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Would It Be Ok To Take Florinef Every Other Day?


IDreamInColor
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When I was in the hospital in September prior to the pots diagnosis the doctor put me on fludrocortisone. But after a few weeks it was keeping my blood pressure way too high, so he took me off it.

At my appt last week he told me to go back on the fludorcortisone. But I have yet to do so for fear of making my blood pressure too high again. I'm also very leary about sterioids. I'm afraid of it causing more yeast overgrowth, and lowering my already low immune system, and anything else it might cause.

Do you think it would be ok to just take it every other day, instead of everyday?

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I believe so, but I would definitely ask your dr first. I had a dr for many years who dealt with my meds at

times taking them every other day. I dont remember if florinef was one or not? 

Maybe you could start with a real low dose? Like 1/2 a poll or 1/4? It'd be hard to cut 1/4 though.

Yogurt can help prevent yeast infections IF you don't have a dairy sensitivity. If you ate sensitive to dairy you could try a probiotic supplement, I've never tried one though

I've had bouts with hbp on florinef as well as  midodrine & it still freaks me out :( my new dr wants me to try midodrine again and i groan. We'll see. I get terribly nervous going to dr's & white coat hypertension. My new dr is putting me on a 24 hr bp and I'm nervous about that, ugh! So I get your anxiety

But above all else, run it by your doc

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Absolutely- this is a very appropriate drug to take every other day. But, certainly discuss it with your doc first. Many of us cut our florinef into halves or quarters. That may also be an option. AND, you can take 1/4 or 1/2 of a tablet every other day to lower your dose even further.

Florinef did (and does) wonderful things for me too, but my BP gets too high as well. I think you've got a great idea.

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The cardiologist who prescribed it for me had me taking it every other day so it can be done that way apparently. Depends on the doctor I guess.

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FYI....My doctor recently told me that cutting my medication anywhere but on the score of the tablet will give you an unreliable amount of the med. I had been cutting one of my drugs on the scored line (in 1/2) and then cutting one of the halves into halves. If you do this, you can't rely on the amount of the medication that you're receiving. So, try to get your doctors to give you a prescription for what you really need, or make sure that you double the dose of what you're taking so you can cut them in half - and save money on your prescriptions!

I hope that was understandable...For example: I take 15 mg of Paxil every night, and I used to get 20 mg pills, so I had to cut a 1/2 and then 1/4 to get 15 mgs. Now I get 30 mg tablets that are scored and get 60 doses for the price of 30. :)

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Florinef is a complicated drug because it takes a while to build up. So high BP can sneak up on you and once you have it, it takes a while to taper off again. I can see why you are hesitant to try it again. I would go back and meet with your dr and ask why he is giving it to you again when you had high BP the last time. I think it makse sense to take less than you were taking the last time if you had high BP. Is your dr a POTS specialist? A lot of drs don't know enough about POTS - they know just enough to be dangerous. They sometimes don't put a lot of thought into what they tell us and then WE have to live with the side effects. It is important to question them (politely, of course) if something doesn't make sense. Florinef can usually be cut in half or taken every other day, but definitely make sure your dr is on board before doing this. There are also other options to bring up BP - compression hose, midodrine, mestinon. A drug like midodrine may be better than florinef, because it only lasts in your system for a few hrs, so if you get high BP, you can stop taking it right away and you will be fine shortly.

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  • 1 month later...

Is florinef and midodrine similar. it seems to have a similar action on me and brings my blood pressure up too high. But it really helped the adrenaline surges.

Has anyone else been told only to take it in the morning?

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Florinef and Midodrine are not similar at all. Florinef retains water in the kidneys and there fore raises blood pressure evenly. Blood pressure should stay higher when laying down or standing up. It stays in the system quite awhile, so you should get a more even blood pressure. The body releases the same hormone in the body in the AM so it is recommended to take it in the AM. Some people report it keeps them awake at night.

Midodrine is a vasoconstrictor and raises blood pressure quickly by constricting your veins. It is very short acting, and you can't lay down when you are on it or your BP can go too high.

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It took me a while to get the right dose of florinef. The dr told me to take 1 tablet per day and after 3 days it felt like my calves were going to explode. Plus i was giving me big headaches. I then tried half, still headaches. Now i take 1/4 and that's much better. I prefer to take 1/4 every day rather than 1/2 every two days because in theory this would allow for a more constant level to be achieved.

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