IDreamInColor Posted October 19, 2011 Report Posted October 19, 2011 I found this video on YouTube which does a wonderful job of explaining the syndrome in depth, and tells what it's like to live with it. Since the video advertises Dinet at the end I was wondering if anyone might happen to know if it's possible to obtain a copy of this video on disc, I really want my family to see it to help them understand.Here is the videohttp://www.youtube.com/watch?v=Fx688XLvA8kThanks so much Quote
Rachel Posted October 20, 2011 Report Posted October 20, 2011 This is a documentary that DINET made a couple of years ago. We don't have any more copies of the DVD currently, but we can order some in the future if we have a volunteer who is willing and able to commit to addressing envelopes and mailing out the DVDs.Rachel Quote
IDreamInColor Posted October 20, 2011 Author Report Posted October 20, 2011 If I was feeling better, I would totally commit to that. Quote
corina Posted October 20, 2011 Report Posted October 20, 2011 rachel, i would like to take that on, do you think that can be done from europe? i can imagine that would be a problem considering the (extra) costs (assuming that they are made in the us, or could that be done here in europe as well?). like to know more! Quote
Tarastomsgirl Posted October 20, 2011 Report Posted October 20, 2011 My gf is Alexia in the video she lives here in my town I talk to her almost every day she might have some on dvd I can check Quote
IDreamInColor Posted October 20, 2011 Author Report Posted October 20, 2011 Tarastomsgirl, that would be awesome! You can email me directly when you find out at Wilow33L@aol.com if you'd like Quote
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