Dysautonomia Specialists In The Pacific Northwest (Usa)?

[peregrine]

Just curious if anyone knows of a dyautonomia specialist in the Pacific Northwest (USA). I live in Washington state, but there doesn't seem to be anyone on the NDRF website closer than Minnesota or southern California. Has anyone seen a doc in this part of the country that they could recommend?

[violette]

University of Washington Neurology Clinic.

[peregrine]

Anyone in particular at UW's Neurology clinic that you'd recommend? My doctor referred me there and I'm seeing someone on Monday the 31st, but if there's a particular person I should be on the lookout for, that would be interesting to know. Thanks!

[violette]

I was referred by Dr. Peter Byers who wanted me to see Dr. Oakley. I ended up seeing Dr. Thyerlei, and so far I think she's fabulous. Did they tell you who you're seeing yet?

[peregrine]

Apparently Dr. Elena Robinson I don't know anything about her, though. Dr. Oakley would have been the first person I'd have guessed (he's the only one whose profile even mentions ANS). Dr. Robinson apparently will be seeing me at the Northwest Hospital outpatient clinic (up by Northgate), and I'm seeing her in 10 days. No idea how she is about autonomic stuff, which is why I asked for the recommendation. Many thanks!

Peter! *grin* I think I met him during grad school interviews in Genome Sciences, although that was four years ago and I haven't seen him since.

[peregrine]

Ah! Dr. Robinson recommended that I see Dr. Oakley (she didn't know anything about dysautonomia besides the basics). After a long and difficult struggle with the referrals process, I will apparently be seeing Dr. Thyerlei (according to my PCP). Can you tell me more about her? (trying to remember if that's within the rules of the board)