doggus Posted October 12, 2011 Report Posted October 12, 2011 Hi everybody - I wondered if there were any POTS doctors in the UK outside London - I am in the south of England. Thank you all. Quote
louloutinks Posted October 12, 2011 Report Posted October 12, 2011 Hi Miss, not that I know of. I know they can do TTT at usual hospitals but it would be worth a trip to NNH at Queens Square. Have you got a dx yet? Quote
doggus Posted October 13, 2011 Author Report Posted October 13, 2011 Hi Tinks - yes I do - saw Prof Mathias and have got POTS and EDS III. For various reasons I am not able to get to London for a while and wanted to explore whether anyone has found POTS docs down south a bit. Quote
anna Posted October 13, 2011 Report Posted October 13, 2011 Hi Missmarple,Their is an EP with an interest in POTS at the Bristol Royal Infirmary I do not recall his name at the mo but will look it up for you ok. My children's cardiolagist suggested he might be of help for my daughter as she is over18 and needed an adult care team!!! Quote
targs66 Posted October 17, 2011 Report Posted October 17, 2011 Just a thought -- I had a TTT at Royal Liverpool, and was told that the results were "normal" despite the fact that my starting BP was something like 79/48. Apparently because my BP went up to the low 90s/60s during the tilt, I was perfectly fine. No one there was interested in the low BP (or all my other debilitating symptoms); they closed my file and I was sent back to my GP who treats me like a hypochondriac. It took my going to Johns Hopkins in Baltimore (my family lives near there) to do a TTT where they also injected a synthetic adrenaline during the test and determined that while I don't have POTS, I do have neurally mediated hypotension (NMH), which is another form of dysautonomia. My heart rate never gets very high, but many of my symptoms are very similar to the people with POTS on this forum, and I have found an absolute wealth of information here.Long story short, if I hadn't had the proper TTT and resulting NMH diagnosis, I would have dismissed the possibility that i had dysautonomia -- and would have missed out on a lot of very useful information -- so I'm trying to spread the word that even if you don't fit in the POTS parameters, you might have something similar!! Quote
sj75 Posted October 17, 2011 Report Posted October 17, 2011 I was going to suggest the Bristol heart centre as well. I went to a conference recently where they were speakers and they were very good.x Quote
E246 Posted October 17, 2011 Report Posted October 17, 2011 There were some posts a while ago about someone really good in the south - I think in the Bristol area.If you search under similar heading to yours -Drs/specialist in England you should find them.Hope this helps. Quote
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