I Just Love My Doctor

[lieze]

I just got a call from disability with questions and I was foolish enough to get my hopes up.

Evidently my doctor told them along with being prescribed Xanax which I have not taken for over a year I just have an eating disorder and anxiety. Thanks so much doctor...

So it sounds like this is going no where.

Can I fire her now or later???

Ugh!!!

What am I going to do when my own doctor has no clue as to how I'm doing.

I could just cry and get very upset but I don't have the energy to spend.

[gertie]

I know what you're going through. That is the reason I could never get my disability.

[lieze]

I'm so sorry to hear that Alicia.

Well I called the lawyer after I got off the phone with disability and asked advice.

They said we don't really know what all my doctor told them-that those things were just what they asked about so they said I should be receiving a decision within four months of applying which should be coming up next month.

She said once I get that denial to call them and they can get my info at that point and go over it.

She said if they feel I need a different dr. After reading her notes they will let me know.

So I sort of decided to try not to think much about the conversation-I was half worried that I should have answered differently and that maybe my entire case would be thrown out based on my responses. I didn't know what to say.....

They asked about the Xanax I told her I didn't even take very much of it and hadn't had any in over a year.

They asked if I was seeing anyone for anxiety and I said no....

They asked if my problems were psychological if I'd be filing and I said no it's the physical problems that prevent me from working.

I hope that was okay....

I doubt myself a lot.

[gertie]

When I was trying to get my disability they would call me & questions me about what I did on a daily basis. I never

knew what to say, other than it varies. Some days I am sicker than other days. It was more like they were interviewing

me to see if I was mentally competent. I don't know how to explain it, but they would call me & try to get me to do all the

talking. I know you've had people call you & they are mostly silent on their end & you feel like you need to keep

the conversation going.

[Yolaclover]

So, so frustarting, this is why i need a new Dr., my doctor, voted best in my county, says he can do nothing more for me, he won't even read about what POTs is!!! When I get my new ins. I'm getting a new one, are you in with me Lieze?

xxoxo

[lieze]

Well I've been feeling my doctor and I are not a match for a while now but felt like maybe this was a bad time to do switch doctors.

I did have an internist I went to when all of this started. He was helpful in getting me set up with a holter monitor and sent me on to a cardiologist

when he saw the episodes I was having with my heart.

He also looked back at results from an ER visit and said I had viral syndrome at the time I had an episode right after chicken pox.

He also prescribed the Xanax,

I'm not sure if he knows anything about POTS or not?

I have not been back to him in over a year.

I guess I felt more comfortable with a woman than a male-but he seemed

to take me more seriously.

I am not sure that anything can be done for me honestly but at this point I need someone who at least recognizes I have the issues I do.

I had taken in my bp monitor with the very low readings 70/40 etc after I was prescribed the beta blocker those readings were without the beta blocker in my system.

He warned me not to take the pill!

My husband had coached me before this call to answer with yes or no and not elaborate.

That is what I did but I felt like half the information was just being left out.

I guess maybe it would not have made a difference anyway.

Edited October 7, 2011 by Rachel

[lieze]

To also clarify-my internist is foreign and I had difficulty understanding him at times. I felt more comfortable speaking with someone I could converse with fluidly than having the communication gap.

It seems like where I made up for in comfort zone it had a price in the long run and he in the

time I saw him took a more professional approach with me and was willing to investigate the actual physical symptoms I was reporting.

With her I get a pat on the knee and it seems when she does send me off to a specialist it's a waste of time because she must put right in her report this patient just has anxiety.

I am lucky to even get an exam from the specialist and now the same thing is happening with disability. All the physical things are being written off-or it seems and they are just questioning oh this person is just on Xanax, has an eating disorder and anxiety!!!

There is just so much more to the story is how I feel.

I've lived with anxiety all my life and I never let it keep me from doing normal things.

And I've done it drug free.

I'm not a loser and it's the way some of this has made me feel.

[lieze]

I have to give her credit-she did order a tilt table test when all of this started and I was just not up for it. I had just went through the cardiac ablation and my body was weak and fatigued.

I was literally afraid I would die on the table.

So that part is partially my fault although I just did not feel ready for more tests at that point.

I question also somewhere along the line if a light bulb shouldn't have gone in that hey I think I need a different doctor.

It's not a good excuse but I've been quite confused and overwhelmed through this entire thing. It really has a way of doing a number on both the body and mind.