Latacia Posted September 20, 2011 Report Share Posted September 20, 2011 I would like to start a local dysautonomia support group in my area since there isn't one. I really don't know how to go about starting one and I haven't found any goodap information on the internet about starting one either. If you have started one or know of any good information on the web then please post here or inbox me. I would really appreciate it. Quote Link to comment Share on other sites More sharing options...
jknh9 Posted September 20, 2011 Report Share Posted September 20, 2011 I don't have any sure-fire suggestions but I think it's a great idea. I really wish there was a group in my area! I think it would be so helpful to connect with others. If you're near a big university, you might try getting in touch with the student health center since a lot of them have various support groups. By the way, you're not in SC are you? Quote Link to comment Share on other sites More sharing options...
pat57 Posted September 21, 2011 Report Share Posted September 21, 2011 Right under the "forum" link is a link "support groups".You can contact each group leader from there. Quote Link to comment Share on other sites More sharing options...
Latacia Posted September 21, 2011 Author Report Share Posted September 21, 2011 @jknh9 no,sorry I'm in MS @Pat thanks for the info I didn't know there was a support group link. Quote Link to comment Share on other sites More sharing options...
Rachel Posted September 22, 2011 Report Share Posted September 22, 2011 If you would like to start a support group in your area, you are welcome to post about it on the forum and invite those who may live nearby. Once you get a support group set up you can send us an email at staff(at)dinet(dot)org and we can add your group to the website listing if you'd like.I hope you're able to find some local people and get a group together! Rachel Quote Link to comment Share on other sites More sharing options...
lieze Posted September 22, 2011 Report Share Posted September 22, 2011 That's exciting! Quote Link to comment Share on other sites More sharing options...
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