HopeSprings Posted September 4, 2011 Report Share Posted September 4, 2011 If you could get rid of one symptom right now - POOF! it's gone... which one would you pick? Quote Link to comment Share on other sites More sharing options...
GingerA Posted September 4, 2011 Report Share Posted September 4, 2011 FATIGUE!!! I think that I could push through if I had more energy. Quote Link to comment Share on other sites More sharing options...
misstraci Posted September 4, 2011 Report Share Posted September 4, 2011 Lightheadedness!!!!! Quote Link to comment Share on other sites More sharing options...
Christy_D Posted September 4, 2011 Report Share Posted September 4, 2011 For my son-Nausea! It is the symptom that keeps him homebound.Christy Quote Link to comment Share on other sites More sharing options...
rmlyonsfamily Posted September 5, 2011 Report Share Posted September 5, 2011 Kayleigh says the GI stuff! Quote Link to comment Share on other sites More sharing options...
sue1234 Posted September 5, 2011 Report Share Posted September 5, 2011 The lightheadedness that keeps me from being upright longer than about 5 minutes. Quote Link to comment Share on other sites More sharing options...
lgtaylor100 Posted September 5, 2011 Report Share Posted September 5, 2011 Fatigue Quote Link to comment Share on other sites More sharing options...
jjbaker17 Posted September 5, 2011 Report Share Posted September 5, 2011 Anxiety/ adrenaline rushes Quote Link to comment Share on other sites More sharing options...
comet555 Posted September 5, 2011 Report Share Posted September 5, 2011 I would definitely pick fatigue. That is the one constant although the degree does vary. Light-headedness would come second to the fatigue only because it's not there all of the time. Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted September 5, 2011 Report Share Posted September 5, 2011 Exhaustion please Quote Link to comment Share on other sites More sharing options...
Brye Posted September 5, 2011 Report Share Posted September 5, 2011 Gosh ... so many to choose!!!FATIGUE for sure!!!Brye Quote Link to comment Share on other sites More sharing options...
Lovebug Posted September 5, 2011 Report Share Posted September 5, 2011 Whichever symptom I'm having at the time you ask me that. Seriously, once I tried to identify my worst symptom when I was actually going through it and I was like...."Gosh, this dizziness is the worst. If only I could be spared dizziness I could deal with the rest"......until the next day when I was having relentless LUQ abd pain so bad that it made me nauseated. Then I'm like....."If I could just get rid of this pain I'd feel somewhat normal"....Ahhh, chronic illness! Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted September 5, 2011 Report Share Posted September 5, 2011 I was going to say fatigue, but definently dizziness. I can push through the fatigue even though its super hard, but the dizziness prevents me from driving and doing anything. I am off balance from it constantly. Quote Link to comment Share on other sites More sharing options...
potsyturvy Posted September 5, 2011 Report Share Posted September 5, 2011 It's a tie between adrenaline rushes and vertigo! Quote Link to comment Share on other sites More sharing options...
jbenz1772 Posted September 5, 2011 Report Share Posted September 5, 2011 Hmmm choices..choices.I'd probably go with the fatigue. But I realize that most the time I'm mentally exhausted from trying to mentally push through the dizziness. Then there are the days that I could totally give up the muscle cramps/twitching/pain.Jen Quote Link to comment Share on other sites More sharing options...
brethor9 Posted September 5, 2011 Report Share Posted September 5, 2011 I have a tie between being lightheaded and too much adrenaline....booo!!!Bren Quote Link to comment Share on other sites More sharing options...
Troy Posted September 5, 2011 Report Share Posted September 5, 2011 I am also undecided between two symptoms, either the "temperature problems" (heat intolerance, fevers, overheating) or the "chemical sensitivy" (intolerance to all stimulants, depressant, opiates and any other drugs that act on my autonomic system). Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted September 5, 2011 Author Report Share Posted September 5, 2011 I didn't answer my own question. For me it's the constant weird feeling in my head. Interesting that fatigue is mentioned most and tachycardia (the hallmark of POTS) doesn't come up much. Even in my "what are your worst top 5" question - tachycardia rated pretty low compared to dizziness, fatigue and other symptoms. Quote Link to comment Share on other sites More sharing options...
stacdliw Posted September 5, 2011 Report Share Posted September 5, 2011 Debilitating fatigue as well! Quote Link to comment Share on other sites More sharing options...
lizababy Posted September 5, 2011 Report Share Posted September 5, 2011 For me (at least right now!) it is the weird neuro symptoms I get from prolonged low blood pressure: confusion, lack of focus, inability to drown out outside noise when in group settings. Quote Link to comment Share on other sites More sharing options...
abnel Posted September 8, 2011 Report Share Posted September 8, 2011 For me it is the debilitating shortness of breath. It's been very bad lately. Quote Link to comment Share on other sites More sharing options...
jbenz1772 Posted September 9, 2011 Report Share Posted September 9, 2011 Lizababy,Reading your post really put words to how I feel sometimes. I get that group setting feeling too, where I start to feel sick from the trying to concentrate through the noise and such. Sometimes I just can't do restaurants or family/friend get togethers. And when my mom starts snapping pictures watch out, I have to go into a room by myself.Jen Quote Link to comment Share on other sites More sharing options...
lizababy Posted September 9, 2011 Report Share Posted September 9, 2011 Jen,I actually skip a lot of events/functions because it can just be so uncomfortable especially in the summer. When it gets real bad, I have trouble focusing through ten minutes of small group work in class or drowning out my co-workers in the next office space. The sudden switch to moderate temperatures has really helped me for short term situations though. I also move up the dosage on my midodrine when it gets tough because the doc allows me to increase as needed. Fingers are crossed that I make it through my sister's semi-baby shower tomorrow :-)~Elizabeth~ Quote Link to comment Share on other sites More sharing options...
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