jbenz1772 Posted July 8, 2011 Report Share Posted July 8, 2011 Just wondering if anyone out there has a persistent eyelid twitch. It does seem to get worse with an aura but is there reguardless about 85% if the time.....always....I know it does get worse as does my pots with stress. And when I notice it gone I have a sense of relief for a bit of a time. I also get muscle twitches in my upper arms and upper legs. Have a handful of times had full body tremors or complete lower body muscle cramps that left me in tears unable to move. Does anyone else have the eyelid twitch and have any suggestions to make it go away or lessen at all. It is driving me insane!!!Thanks,Jennifer Quote Link to comment Share on other sites More sharing options...
yuliya Posted July 8, 2011 Report Share Posted July 8, 2011 I have had a few instances of eye twitching for a few days at a time. There was nothing I could do to help it, and it went away on its own and comes back on its own. I really think its just part of the tremors that I already have in my hand and sometimes in my legs and head. Quote Link to comment Share on other sites More sharing options...
Chaos Posted July 8, 2011 Report Share Posted July 8, 2011 I've had that eyelid twitch thing go on for months at a time and then it stops spontaneously. And then, for whatever reason, it starts back up again and goes on for weeks or months and then it stops...... Never have been able to trigger it or make it stop, or figure out what it's associated with. Just one more lovely bizarre symptom that I blame on the autonomic dysfunction. When it first started happening, it made me crazy too. Now it doesn't seem to bug me as much. Kind of like an old friend coming for a visit.... I'm always glad when it leaves. Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted July 8, 2011 Report Share Posted July 8, 2011 I get these when I'm over tired, it makes me nauseous and my vision real jerky. It's like looking through a camera that's jumping around. Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted July 8, 2011 Report Share Posted July 8, 2011 I get the eyelid twitch sometimes too and occasionally other body parts. It lasts maybe several hours or a day and then goes away. It is very annoying - I agree! I assumed it was part of nervous system malfunction. Quote Link to comment Share on other sites More sharing options...
handmadebyemy Posted July 11, 2011 Report Share Posted July 11, 2011 yes! annoying! Quote Link to comment Share on other sites More sharing options...
Libby Posted July 11, 2011 Report Share Posted July 11, 2011 I had this when I was a kid. It lasted for 3 years - got worse in the car, weirdly. It went away eventually. That probably doesn't help much. Quote Link to comment Share on other sites More sharing options...
utah1991 Posted November 23, 2013 Report Share Posted November 23, 2013 I walk around like a pirate with my one eye closed. I can't stand the twitching....no trigger...just comes and goes as it pleases! Gah! I'll take it over my other symptoms!! Quote Link to comment Share on other sites More sharing options...
KareBear Posted November 23, 2013 Report Share Posted November 23, 2013 These are the usual causes of eyelid twitching: StressTirednessEye strainCaffeineAlcoholDry eyesNutritional imbalancesAllergies Quote Link to comment Share on other sites More sharing options...
dkd Posted November 23, 2013 Report Share Posted November 23, 2013 I have eyelid twitching that started in 2010 after I got a flu shot. It's most everyday, but not all day. Sometimes I get twitches in other places also (leg, abdomen, other parts of face).I've mentioned it to several doctors and they never address it. Quote Link to comment Share on other sites More sharing options...
Rebeccawithdogs Posted November 23, 2013 Report Share Posted November 23, 2013 Oh yes, it comes and goes. Twitching in my calves and on my right lower eyelid, the calves were especially annoying. It would happen especially after exercise. It comes and goes and is very annoying. Quote Link to comment Share on other sites More sharing options...
bunny Posted December 29, 2013 Report Share Posted December 29, 2013 FWIW, I've had this on and off over the years. Due to a Clostridium difficile infection which wasn't going away, after 9 months I finally was able to get a bacterial transplant done. Since that, the twitch has stopped. Not sure what the connection is, but I throw it out here for people to ponder. It was becoming more frequent and was very annoying towards the end. Quote Link to comment Share on other sites More sharing options...
ddschool Posted December 29, 2013 Report Share Posted December 29, 2013 Yes, I get it. My eye doc gave me an eye drop (Emadine I think) and it helped Quote Link to comment Share on other sites More sharing options...
looneymom Posted December 30, 2013 Report Share Posted December 30, 2013 The twitching and tremors can be annoying and frustrating. Tyler does not have the eye twiching problem, but is not able to exercise due to tremors or twitches from waist down. He tried doing leg marches while sitting in a chair yesterday and almost fell out of the chair. He has not been able to do any physical therapy since all this came back over a year ago. I strongly suspect this has something to do with the high level of antibodies found in his brain. BTW these antibodies are caused by a bacteria or virus.Rachel Quote Link to comment Share on other sites More sharing options...
JenniferInOhio Posted December 30, 2013 Report Share Posted December 30, 2013 My lower right eyelash line was twitching ALL through the summer and fall. Not constantly, but several times a day. Drove me crazy. All of a sudden this month, it has subsided - I have no idea why it started or stopped. Quote Link to comment Share on other sites More sharing options...
Sallyhh Posted January 3, 2014 Report Share Posted January 3, 2014 hello! this is my very first post on the forum as a new member! A bit nervous!I have done alot of reading on an EhlersDanlos site amongst others re twitching and as a result some months ago started taking magnesium supplements (chelated magnesium) . Amazing! No more eye or lip twitching and even more wonderful, no more restless leg syndrome. I've had a red cell magnesium blood test to make sure my levels are still ok. They are. Quote Link to comment Share on other sites More sharing options...
Aeris5000 Posted January 5, 2014 Report Share Posted January 5, 2014 My upper, left lid has twitched before, the last time being the entire month of May 2013. It didn't twitch all the time, maybe a few dozen times a day. But I've had this symptom pop up every so often LONG before POTS showed up 1.5 years ago. I've chalked it up to stress and fatigue, not so much nervous system dysfunction. Quote Link to comment Share on other sites More sharing options...
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