PetuniasMom Posted May 27, 2011 Report Share Posted May 27, 2011 Not too sure how to ask what is on my mind... we are now on the right track as far as medical appointments and a referral to an autonomic clinic. Until then, my daughter is in the care of an awesome cardiologist, I feel fortunate, and looked after to the best of his ability. The problem I am having tonight, is dealing with it all. How do I tell my daughter that there is no magic pill... that she may not go back to school in September....that she may feel this way for a very long time. I think she is expecting that this referral to the clinic will be a "finally" for her - "finally, someone who knows how to fix me..." But, that isnt the case, is it.I know that we can manage symptoms to the point of feeling much better, with the right medication and the assistance of the proper doctors. I guess I am just tonight reeling from the fact that my high-achieving, intelligent, athletic, got-the-world-by-the-tail daughter who very badly wants her life back, may not have her life-as-she-knew-it back ever. She may not be able to have a summer job, even next year...and what about her dream of going to University, she is struggling in a way she has never struggled before with brain fog issues, let alone the fact that she can't go to school right now, and will she even be well enough to leave home for further education? Is she disabled? Her quality of life has changed so drastically - how do I tell her, and help her deal with the loss...when we see all the things her friends are doing, and what they accomplish in a day, or where they go in a day compared to what my daughter is able to manage - we are happy if she has a shower and completes an hour of schoolwork in between Gatorades and blood pressure medication I am so sad for her, and I don't know what to do. I am trying to stay positive, because I know she will take her cues from me, but man, sometimes it is just so hard. Quote Link to comment Share on other sites More sharing options...
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