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Darlene

Dysautonomia

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Wow! I hope not!!! However I guess it wouldn't surprise me if it could. Meds, electrolyte imbalances, heart rhythm problems, scary. It seems like when you hear of young people dying who make the news frequently "they had a heart condition" I always figured if I suffered a sudden cardiac death that's what people would say "she had that heart conditon" Even if that wasn't the cause. On that note ... off to bed for me. Good night!!

Brye

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Is it just me or is this a sensationalized title to draw people in and then there isn't any information to back it up? All I see it this title then a bunch of links about sudden cardiac arrest. Did I miss something? Is there a study or factual information linking this? I think people need to be really careful about where their medical information comes from.

Just my .02

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I agree that there is sensationalized. There's no specific info about this person's condition. I'd ignore it, and I've had heart problems related to excessive sympathetic activity like this article mentions. There was nothing "sudden" about the cascade of symptoms I had prior to going to the hospital.

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And I agree with Janie and KCMom. I've had heart issues for the last 6 years, a year before I was diagnosed with POTS. Unless there's a scientific study out there somewhere?

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Generally, there's somehting else wrong with the heart...like a valve problem, or other heart deformity. There's usually something more to it.

I heard people with EDS shouldn't have a tilt table done, as they can code during the test. Delayed blood pooling due to the poor vascular tone. Sometimes BP drops are sudden, and the heart doesn't have time to compensate. Meaning that when the sudden drop in BP occurs, because the of the delay, it's not expected like the typical BP drops in primary POTS without EDS.

I won't even look at the article, as it's probably not accurate at all.

Maxine :0)

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There are different kinds of dysautonomia and some do eventually become life-threatening (eg Shy-Drager), but these are rarer than POTS. I think we've all been told by numerous different specialists that POTS is life-changing but not life-threatening. While much more needs to be understood, the types of arrythmias that POTS causes are not life-threatening. Another heart, or other, medical problem would have to be involved for sudden cardiac death to occur. Just don't want anyone to needlessly worry!

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When I was first diagnosed I asked Grubb if POTS can kill you. He said not likely. Then I found that website, and wondered.

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Before I found out I had Pots, I was taken to hospital with concave upwards ST elevations and was told that I had had a heart attack - then I was told I hadn't as there was no tropanine (sp?) in my blood. I had another ECG a while later and I had M shaped P waves .....so I was wondering, could it all have been Pots/dysautonomia related?

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Is it just me or is this a sensationalized title to draw people in and then there isn't any information to back it up? All I see it this title then a bunch of links about sudden cardiac arrest. Did I miss something? Is there a study or factual information linking this? I think people need to be really careful about where their medical information comes from.

Just my .02

I'm still looking for the information in this link too :blink:

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Here is the tool linked to at this site for assessing your risk.

http://ceondemand.org/hrs/ram/splash.php

I would say that if you have concerns about your risk for sudden cardiac death that you discuss this with your doctor, including a plan for reducing your risk if there is one, even after using this tool. I think it is impossible to evaluate this using the internet. There is no specific information I have seen that links POTS to this.

Ventricular fibrillation (VF) is the most common cause of SCD, so anything that boosts your risk for going into that very specific type of arrythmia would be a risk factor.

http://www.hrsonline.org/PatientInfo/HeartRhythmDisorders/SCA/index.cfm

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Before I found out I had Pots, I was taken to hospital with concave upwards ST elevations and was told that I had had a heart attack - then I was told I hadn't as there was no tropanine (sp?) in my blood. I had another ECG a while later and I had M shaped P waves .....so I was wondering, could it all have been Pots/dysautonomia related?

Hi Tinks! I think what you are referring to in your post is "troponin". It is a cardiac specific enzyme that elevates in the presence of damage to the heart muscle. If you have decreased blood flow to your heart (as in a blockage) and damage occurs to the heart muscle, troponin will be released hours afterward. This, however, has nothing to do with sudden cardiac death which can happen as a result of a heart arrhythmia. I'm no expert on EKG's but I don't see why Dysautonomia couldn't cause some arrhythmias like ST, SVT, & those from electrolyte imbalances. Maybe someone else can give you more info.

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Maybe it's congenital? I have an upside down EKG, but it's not a problem, it's just the way it is :D

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