Blood Pressure Poll

[juliegee]

Snuff-

Sorry you are here, but WELCOME to our autonomically dysfunctional family. My BP has been as low as yours & I felt awful- had to lie until it rebounded. I have gone through long periods of times feeling pre-syncopal any time I stood. THAT"S when it's too low. When your numbers are below 90/60 & you have symptoms to match. A tiny dose of Florinef, salt & extra water helped me.

I wanted to write cause I LOVE your name. I'm a huge Alice in Chains fan via my 18 year old son. You're on my iPod when I run "Ain't found a way to kill me yet. Eyes burning with stinging sweat. Every path leads me to nowhere..." Perks my HR up just thinking of it.

Julie

[Frugalmama]

I'm just like enko and Mack's Mom. The first time I went to the cardio, they took my bp and it was about 120/75. They looked at me like I was nuts when I asked them if they were sure the machine was right, because my bp was always 90/60 (except for the occasional 100/60). But recently I've started taking my bp when having a symptom flare up, and it actually swings up...so I'll add that to the symptom list!

[Tzipora]

On average I tend to be about 90/50. Sometimes more like 95/60 but pretty close to there. Occasionally it's lower. Last week I was super stressed out over a nasty argument with someone and my home health nurse came over and I was telling her the whole crazy story and all hyped up so my pulse was moderately high (for me, which was like 125ish) and my blood pressure then was something like 116/85. That's "high" for me. It's funny too because I can be in the ER or something really sick and feeling so off and I might get a 115/70 or so reading and they'll be like "That's great!" and I'm always saying "That's HIGH for me!" and sure enough they'll check it when I'm in less pain or whatever brought me in and it'll be really low again (or my "normal").

On a random note, when my GI motility specialist that I see for my Gastroparesis first suspected Dysautonomia I had definite orthostatic hypotension. Then my nutrition got super ugly and now it's better but now I'm just consistently really low when I didn't used to run quite so low but I don't have orthostatic hypotension anymore. I'm so intensely curious about the nutritional aspects of this all. My POTS symptoms are no better, maybe worse since my nutrition improved but some of the symptoms are just different now. I've been wondering if malnutrition and some major B vitamin deficiencies might have done permanent damage.

[kmichaelson]

Mine is usually about 90/60, but I've seen it as high as 130/80 (soon after standing) and as low as 42/25.

I am new here, but had to post to this. My bp will go as low as 65/38 (even though I have been told if it went that low there was no way I could be walking around!). On "normal" feeling occasions it is 100/50. Anyone know how low is TOO low?

Snuff, when my bp was 42/25, I wasn't completely passed out though I felt completely horrible, so I believe you could be walking around with it at 65/38, though I bet you didn't feel great! I need to get a bp cuff because I wonder where my bp is when I'm feeling crummy.

Edit: I just found this blood pressure chart on what is considered high, low, normal and what symptoms are associated with the different levels. According to this chart, I should have been in a coma/dead, LOL. So maybe it's not entirely accurate, but it least it gives an idea of what is considered dangerously low: http://www.vaughns-1-pagers.com/medicine/blood-pressure.htm

[RichGotsPots]

I've never been tested low yet. Last time I was in the ER: 1st day 160/120, 2nd day 148/110, 3rd day 128/90. I'm was on high dose prednisone and that cause a spike, I was just getting off it in the hospital.. I should invest in a wrist BP monitor though

[blueskies]

I always used to read low in a doctor's surgery or in a hospital. Then suddenly it started to swing high each time I visited the doctor (a general practicioner) to the point that she put me on bp medication. After about a year, and blaming every other thing except that med I realized that it was probably causing me to sweat even more than I now do and feel a bit 'off.' I took myself off the bp med (I know I should have seen a doc first but if I saw a doc about everything I'd be seeing one every day) and started monitoring my bp at home. It was normal nearly every time, with only the occasional swing to high. I saw that gp and showed her my record of readings and she said I didn't need bp medication. It seems I had suddenly, a few years ago, during a very stressful time, developed 'white coat syndrome' but mine only applies to doctors. Whenever a nurse takes it it's fine. Crazy, i know. I was in hospital last year and every reading was lower than normal.

Each morning I get up and take my bp and it's good. But my pulse rate is nearly always over that 30 beats extra. As the day wears on my pr comes down, usually. Unless I'm standing still or sitting with my feet down for too long.

[TCP]

When the neuropathy started it was low sometimes 65/32 and four years on it swings from low to high. When I'm stressed it rockets and my head and upper body go crimson and I feel like I'm going to burst.

[JenJen]

lowest i've been is 88/17. I was actually up and walking. i was promptly sent back to bed.