Finding A Doctor-Vent

[Friedbrain]

I am moving from a small town to a large town, and I was SO EXCITED because I thought I'd finally be able to find a good doctor. Well, er.........No. I'm so frustrated I could tear my hair out. I spoke to both the Uni neuros' office and the suburban hospital's neuros' office, and both of them were like "sure, we have a doc for you", only to find out they don't. When I explained I wanted someone familiar with central AND peripheral neuropathy, ie the autonomic nervous system, I was given the name of a muscle neuro (gah, forgetting the name of that). I'm like Lady, Nothing is Wrong with my muscles!!!! I even chucked my pride and emailed a basic scientist in the town and explained my problem, and said that although I realized he was a basic scientist, since he TRAINED med students on the autonomic nervous system, maybe he could direct me to a doc who treated it. He was SO NICE and really considered my question and asked around, but in the end had to apologize, cuz there is no one who does that kind of clinical work.

Same with the endocrinologist search. As I said in other threads here, I may be mis-diagnosed re adrenal problems, and really want a doc familiar with adrenal dysfunction. As with neurologists who specialize in brain and forget the rest, most endocrinologists are diabetes specialists and forget everything else over the years. So I specifically asked the Uni office for a doc who knows adrenal dysfunction. After 20 min on the phone, even with me ASKING who they were thinking would be a match, it took that long to get a name-they told me who the appt was with. I said "his name isn't on your website"; they said he's a doc there and sure he knows adrenal gland. Well, I googled him later, and he's a newbie out of another city, who just finished up research on obesity and diabetes. I had told that receptionist I don't know HOW MANY TIMES I don't want a person who specializes in diabetes. So ticked! I spent a half hour today calling a couple different endo offices in the suburbs and trying to find someone sooner (heck, if I'm seeing an endo who can't help me, why wait two months to find that out?); scheduled with one much closer much sooner. My guess is that she won't be much help, so I'm going to keep my other appt just in case, and I can ask her opinion or maybe call and find out more about the newbie when I get there. It's always possible that he's young enough that he hasn't forgotten everything else he was taught in his specialty.

Dang doctors.

[HopeSprings]

"I'm like Lady, Nothing is Wrong with my muscles!!!!"

LOL! You're my new hero - I love you! I totally understand where you're coming from. Doctor frustration is almost as maddening as the disorder itself sometimes. It's true about endocrinologists - most are all about diabetes and it's so hard to find one to look at the more unusual stuff. For autonomic neuropathy, I think you want a neurologist who specializes in neuro-muscular disease. Oh, good luck - I hope you find someone.