Let's See How Common Gluten Intolerance Is With The Potsies.

[Wendy C.]

lgail, yes, I haven't had any positive tests, but I notice that I don't feel sick/POTSy after eating gluten-free muffins or cookies, but I do if I eat regular ones...I'm not sure yet, still experimenting, but it also seems to be easier for me to stand up after a small GF meal than a regular one. So, I am certainly going on a gluten-reduced diet to start.

[lalalisa]

For those of you who've noticed a difference when you don't eat gluten I am curious if you noticed the difference when you were 100% gluten free or if you just cut out most of it (cereal, bread, pasta, etc). I'm beginning a trial now and I'm wondering how much I should be reading labels and trying to be 100% gluten free to see if I have an intolerance.

Thanks,

Lisa

[bunny]

Back when I was going through GI ****, celiac was usually the first thing every GI doc tried to blame it on and discharge me with instructions not to eat gluten.

So, I did what any true scientist would do -- gluten binge! 2 straight weeks of packing as many gluten-laden foods as I could eat at every meal and my symptoms had mostly subsided. Informed the Dr of this and he was incredulous that I'd try such a stunt and even more angry that I'd challenge his dx. He then wanted to do exploratory surgery... No thanks.

Its been 3 years since I finally figured out my GI issues and treatment on my own and the only GI issues I've had since then have been due to gluttony, not gluten.

[L4UR3N]

I think it would be important to clarify what testing everyone had done?

Many doctors only test for Celiac disease and they do NOT test for a gluten intolerance. The anti-tissue transglutaminase is specific for celiac disease, where as anti-gliadin can show a gluten intolerance. Therefore if someone went to their doctor asking to be tested, and the only test that was performed was the anti-tissue transglutaminase test (which is often the case), they can still not be sure that they dont have a gluten intolerance.

For me, my anti-gliadin was off the charts, but my anti-transglutiminase was negative.