faint factory Posted April 8, 2011 Report Share Posted April 8, 2011 I know this is quite common, but would like to get a better picture. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted April 8, 2011 Report Share Posted April 8, 2011 I had a 4x above upper limit for anti-gliadin IgA, but my biopsy was negative. Quote Link to comment Share on other sites More sharing options...
Birdlady Posted April 8, 2011 Report Share Posted April 8, 2011 IgG allergy tests says I have reactions to gluten, so I've avoided it for more than a year now. I'm not sure if it's done anything, but then again I haven't cheated to find out. heh Quote Link to comment Share on other sites More sharing options...
Sallysblooms Posted April 8, 2011 Report Share Posted April 8, 2011 Tests can't tell you if you are just sensitive and that affects the nervous system so I do not eat gluten. I do it to help my POTS and CFS. Quote Link to comment Share on other sites More sharing options...
sandymbme Posted April 9, 2011 Report Share Posted April 9, 2011 I had negative tests, until I was in the hospital in January and the GI doc noticed my IgA (?) was abnormally low, saying that would make any celiac test invalidated. I had recently had a negative endoscopy, but this gastro felt that there was more than enough clinical evidence to warrant genetic testing. Which came back positive. When we factored in huge family history of colon cancer, and the fact that my constant diarrhea, nausea and rapid weight loss all stabilized once I went on a strict gluten free diet, she felt that was enough to base a diagnosis of Celiac disease, especially given my reaction on the two occasion I ate some thing that had hidden gluten or cross contamination. The effect were dramatic! I was so bummed though, because I am absolutely the carb queen, giving up beloved pastries, cakes, and breads is rough! But I have to admit, not wasting away to nothing is a huge motivator!Sandy Quote Link to comment Share on other sites More sharing options...
Birdlady Posted April 10, 2011 Report Share Posted April 10, 2011 Most blood tests will come back negative, so everyone who said no should keep that in mind. It is not uncommon. Any positive blood test means you definitely have something going on. A few months trial of GF is definitely warranted. There is a lot of information about this the different types of blood tests and you can search google if you want more information. Here's a post to a celiac forum that is an interesting read. http://www.celiac.com/gluten-free/topic/74266-gliadin-iga/As Sandy said, if you have low IgA or IgG immunoglobulins in your body, then none of the antibodies tests will ever show an elevation because your body cannot produce enough of them. Ironically this is common in Celiac if I remember correctly.I don't think I have symptoms when I eat gluten, but it could be affecting my nervous system so I just decided to get rid of it. My husband is highly reactive to gluten so I did it mostly for him. You cannot have gluten eaters in the same kitchen as a non-gluten eater. Well you can, but it is extremely difficult to keep cross contamination from occurring. I didn't feel like dealing with all of the hassle. Here's a good blog entry about this problem I found through google. Another really good read for those following or attempting to follow a GF diet.http://tastyeatsathome.wordpress.com/2011/03/20/kids-in-the-kitchen-cutting-down-cross-contamination-in-a-shared-kitchen-and-molten-chocolate-lava-cake/ Quote Link to comment Share on other sites More sharing options...
Magnesiumgirl Posted May 20, 2011 Report Share Posted May 20, 2011 This is interesting! Quote Link to comment Share on other sites More sharing options...
Sallysblooms Posted May 20, 2011 Report Share Posted May 20, 2011 There is no way to test just a little sensitivity and it can be bad for the nervous system so I don't eat gluten...just in case. Quote Link to comment Share on other sites More sharing options...
abnel Posted May 21, 2011 Report Share Posted May 21, 2011 There is a good resource available from the Royal Prince Alfred Hospital in Sydney, Australia that can be mail ordered and delivered on strict elimination diets for food intolerances. They have a website. I decided to go down this path as the blood tests on food intolerances are not conclusive, and I have been told by several doctors that the only way of truly ruling in or out food intolerances is via a strict elimination diet. I have therefore purchased both the book that explains intolerances and the cooking book that assists with a strict elimination diet. It has easy recipe suggestions for gluten free, dairy free, egg free, soy free, and low chemical diets. I have been told by a dietician that you should do the fructose free diet separately as otherwise the diet is too limiting, but she has had clients that have done both at the same time. I am going to start the strict elimination diet in a month or two. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted May 21, 2011 Report Share Posted May 21, 2011 Many patients with autoimmune disorders find that they develop food intolerances. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted May 22, 2011 Report Share Posted May 22, 2011 Or, what if it's actually the opposite: Many people that have food intolerances find they develop autoimmune issues? Quote Link to comment Share on other sites More sharing options...
lgtaylor100 Posted May 22, 2011 Report Share Posted May 22, 2011 I really don't have many food intolerances( that I know about) except for pineapple and onions. I have tested negative for celiac but am considering a gluten free diet anyway because I heard that generally many people just feel better that way. Is there anyone else out there with out known sensitivities who feels better on a gluten free diet? Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted May 24, 2011 Report Share Posted May 24, 2011 Or, what if it's actually the opposite: Many people that have food intolerances find they develop autoimmune issues? Perhaps - but im yet to see convincing evidence of this. its seems more likely that people with autoimmune disease of genetic predisposition to faulty inate immunity. Quote Link to comment Share on other sites More sharing options...
RockiesGirl Posted May 24, 2011 Report Share Posted May 24, 2011 I had my blood tested for allergies and while I am not Gluten intolerant, I am allergic to Wheat. Hence, almost everything has wheat in it and I eat a gluten free diet.Don't know if this helps anyone So there are many facets to this puzzle. Quote Link to comment Share on other sites More sharing options...
Yolaclover Posted July 15, 2011 Report Share Posted July 15, 2011 I had a 4x above upper limit for anti-gliadin IgA, no biopsy yet Quote Link to comment Share on other sites More sharing options...
sue1234 Posted July 15, 2011 Report Share Posted July 15, 2011 718Mom, I just read your post and thought I wrote it! I also have 4x the upper limit of anti-gliadin antibodies. My biopsy from almost two years ago was negative, but I am supposed to have another biopsy next month. Quote Link to comment Share on other sites More sharing options...
Yolaclover Posted July 16, 2011 Report Share Posted July 16, 2011 I just had another test done iga again I think, don't know results yet! Will post when I know Quote Link to comment Share on other sites More sharing options...
flop Posted July 17, 2011 Report Share Posted July 17, 2011 Duodenal biopsy to test for coeliac disease will only show positive if you have been eating gluten regularly for several months before the biopsy. This is because in coeliac disease (not gluten intolerance) the presence of gluten actually damages the wall of the duodenum and it is that damage that is seen under the microscope. If someone with coeliac disease follows a strict gluten free diet and then gas the biopsy they will get a false-negative result. Flop Quote Link to comment Share on other sites More sharing options...
sue1234 Posted July 17, 2011 Report Share Posted July 17, 2011 I have not cut gluten out of my diet yet, knowing I may eventually have another biopsy. I have cut out the biggies, though, such as bread. I still eat all the foods with "hidden" gluten and things like breaded food. Quote Link to comment Share on other sites More sharing options...
issie Posted August 17, 2011 Report Share Posted August 17, 2011 I recently had food allergy testing done. I found out that the blood and skin test for allergies are only 95% accurate. I have a known life or death reaction to shrimp and did not test positive to it. I could NOT understand not having positive reactions to allot of the foods tested, because I do react when I eat them. The doctor said that because of the break down of the serums to do the testing, it breaks down the proteins and it isn't in it's true form as when we eat it. So, there are false negatives with allergy testing. Save your money and pay attention to your own reactions. If it bothers you don't eat it. It may be different with tissue biopises - I don't know. But, I didn't test positive for glutten intolerance - but have found that I'm so much better without it. And as Rama said - I have known autoimmune problems and this could play a big part in the reactions. Your autoimmune system attacks things when it shouldn't - this could happen with foods too (or other things - shampoo, creams, etc.). Therefore, the possible mast cell reaction that we've all talked about before. Allergic to nothing with the possiblity to react to everything - and never knowing when or to what, unpredictable. Quote Link to comment Share on other sites More sharing options...
GingerA Posted September 29, 2011 Report Share Posted September 29, 2011 I recently cut gluten out of my diet and can see a marked improvement in the way I feel. I Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted October 1, 2011 Report Share Posted October 1, 2011 Jsyk .. In my celiac support group we have several people who's biopsies were negative for celiacuntil their doctors finally got a good biopsy. This problem is well recognized with celiacs ..When I first learned I had gluten intolerance back in 2005, i was shocked to hear that it was understood that it takes 11 years to get a celiac diagnosis after the patient shows symptoms. Any guesses why ? Here.s a clue .. $ .. Quote Link to comment Share on other sites More sharing options...
Yolaclover Posted October 14, 2011 Report Share Posted October 14, 2011 My biopsy had good villi and high T-cell lymphocytes , I am doing a stool sample now that I will give tomorrow and I did a DNA test. Still waiting to see what Dr. thinks, have to wait until results come in. Quote Link to comment Share on other sites More sharing options...
fiona-jane Posted November 15, 2011 Report Share Posted November 15, 2011 i have neither but react badly to wheat and wheat derivatives (eg wheat starch). i get the usual allergy symptoms and not sure if its them that trigger my PoTS or something in the wheat. just dont eat it now. but annoyinly- gluten free food isnt necessarily wheat free which makes eating at restaurants even harder cos they dont seem to understand that i cant eat wheat starch but can eat rye and oats........ they assume its all related to gluten. sigh. got really good at reading labels!fi Quote Link to comment Share on other sites More sharing options...
kmichaelson Posted November 15, 2011 Report Share Posted November 15, 2011 I've been tested twice for Celiac's and gluten intolerance because diarrhea is one of my chronic symptoms (too much info, I know!), but I've tested negative both times. Quote Link to comment Share on other sites More sharing options...
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