ramakentesh Posted April 14, 2011 Report Share Posted April 14, 2011 It does help my tachy trememdously.anything specific about your POTS? Quote Link to comment Share on other sites More sharing options...
skiberthoud Posted April 14, 2011 Report Share Posted April 14, 2011 anything specific about your POTS?Rama, sorry, but I'm not sure what you're asking. My presentation of POTS or mestinons influence? Quote Link to comment Share on other sites More sharing options...
houswoea Posted April 16, 2011 Report Share Posted April 16, 2011 I like this medicine a lot!! They wouldn't give it to me until it was the last resort for some reason.But ever since I started it, I've been in well- I guess you could say "remission"! It's weird because I truly thought my life would never be normal again, but with mestinon in combination with my other meds, I almost never have debilitating or even bothersome symptoms. I don't even need IV saline anymore! Quote Link to comment Share on other sites More sharing options...
stacdliw Posted April 17, 2011 Report Share Posted April 17, 2011 I've had moderate gastroparesis for the past six years and was just diagnosed with POTS (postural hypertension) last October. My nerurologist wanted me to go on Flurocoritisone, but I have allergic reactions to coritisone, so she prescibed Pyrdostigmine 60mg 3x daily. I've tried that dosage several times, but each time, it just upset by stomach immensely. So, I now take 30mg 3x daily and that seems to help. It has significantly improved my "brain fog" and I have seen good immprovement with my "huffing and puffing" when walking short distances. I don't have to ride the motorized carts in the stores as often, though I still have my bad days. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted April 19, 2011 Report Share Posted April 19, 2011 any of the people that this medication has helped suffer from visual snow? Quote Link to comment Share on other sites More sharing options...
skiberthoud Posted April 19, 2011 Report Share Posted April 19, 2011 Rama, no visual snow here. I'm assuming you're having some? Any positives for you? Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted March 17, 2012 Report Share Posted March 17, 2012 I found this medication ok. Well tolerated, no real side effects other than occasional weakness. Seems to work better and better with time. Only down side is that it can make me drowsy.benefits seem to be a major improvement in how I feel sitting, maybe less so standing, a great improvement in how i respond to exercise and vision. Id say all in all it can improve me up to 30-40% on good days, but if I over do it I can crash worse in some ways than before I was on it. I feel much more relaxed on it, almost 'stoned' at times, I find caffeine has done from being something that made me super jittery to having very little reaction at all to it on Mestinon. Quote Link to comment Share on other sites More sharing options...
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