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Do You Also Have Some Cardiac Problems?


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I was just coming to the board to look for/start a topic like this. Great minds. :lol:

Yesterday I had an echo, and there was a new girl learning how to work the machine. If she hadn't been there, I doubt the instructing nurse/tech would have said anything out loud, but she made a point of asking the new girl to check for MVP in my records, because there was flattening of the valve. My last two echos were both normal, with the most recent report specifically saying 'No MVP'.

My (new) cardio mentioned hearing a click. I saw my GP just a few weeks ago, and she didn't mention any click so I'm hoping the defect is just so minute that only a trained specialist could pick up on it. And my old cardio was an idiot, so I wouldn't be surprised if it were missed.

Anyway, I'll know more after my follow up next week, but I'm pretty sure I have MVP.

Mitral Valve Prolapse Syndrome seems to have a lot of overlap with POTS. I wonder how many of us have MVP...

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I have mild mitral and moderate tricuspid valve regurgitation. My EKGs always read abnormal but the cardiologist doesn't seem to be concerned by it. Says it's what they expect to see with someone with EDS issues.

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I was told 5 years pre-POTS that I had mild MVP. My very last cardio evaluation stated that I don't have it, so I don't know. I wonder if way back when they could hear it because I didn't drink the volume of fluids that I do now. But then again, I don't hold onto all those fluids, so...I have no clue!

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I've been dx'd with ventricular tachycardia and inappropriate sinus tachycardia, and my holters have also shown runs of SVT, PACs and PVCs. My heart is structurally normal, thankfully.

I was misdiagnosed with MVP by my first cardiologist. He thought he heard a click when I stood up, but it was probably extra-hard heartbeats from standing up that did it. I've had two or three echos and a cardiac MRI, and they've all been fine.

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Okay, where do I start? I was diagnosed with heart problems before I was diagnosed with POTS/dysautonomia...about a year in-between. I got really sick, went to Mayo Arizona, and found out that I had severe bradycardia and needed a pacemaker, dilated cardiomyopathy, atrial fib, and congestive heart failure. My ejection fraction was low, but not horrible, but I had many symptoms. I was put on Coreg and Coumadin (blood thinner). Things gradually improved over the next couple of years.

I was diagnosed 5 months ago with a blood clot on my pacer wire that is planted in the right atrium of my heart, and am back on Coumadin for that. It is loosely attached, and swings every time my heart beats. Yikes! My echo at three months showed no change in the clot, and I go for my next echo in mid-May, at 6 months. My other pacer wire is obstructing my tricuspid valve, causing moderate to severe regurgitation. I think that's enough!

Hope everyone is as well as can be~

Cheers,

Jana

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Thank you all for replying :)

Libby,

I have similar problem. One cardiologist said she heard murmur, but second one said he heard nothing. The first one listened to my heart while I was laying down flat, second one while I was sitting. Maybe that has to do something..? :huh: But at least my ultrasound showed MVP, I'm "on the safe side" so they can't contradict that. Can't they? :blink:

Anybody have AV blocks by Weckenback/Mobitz? What is that? Recently one doctor refused to perform autonomic system testing on me because I have those (in my sleep)..

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I've noticed that when I experience an increase in palps and irregular heart beat that I get extremely dizzy, lightheaded...which for me brings on nausea/sweating/pre-syncope. It gets quite bad actually and I have squat or go supine more frequently than usual. I have less NCS symptoms when my heart is not doing the MVP flipflop :)

what do you mean under "It wreaks havoc on my NCS"?

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I have MVP and sinus tachycardia. There is some debate as to whether I have a murmur and/or an arrythmia.

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My current doctor connects the two.

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