enko Posted April 7, 2011 Report Share Posted April 7, 2011 I'm diagnosed with mitral valve prolapse. Holter ECG also showed some weird things (sinus arrhythmia, nodal rhythm..).. What are your experiences and/or problems? Quote Link to comment Share on other sites More sharing options...
abbriggs Posted April 8, 2011 Report Share Posted April 8, 2011 I have Inappropriate sinus Tachicardia, SVT (Which I had ablation for) PAC's, & PVC's Quote Link to comment Share on other sites More sharing options...
Libby Posted April 8, 2011 Report Share Posted April 8, 2011 I was just coming to the board to look for/start a topic like this. Great minds. Yesterday I had an echo, and there was a new girl learning how to work the machine. If she hadn't been there, I doubt the instructing nurse/tech would have said anything out loud, but she made a point of asking the new girl to check for MVP in my records, because there was flattening of the valve. My last two echos were both normal, with the most recent report specifically saying 'No MVP'.My (new) cardio mentioned hearing a click. I saw my GP just a few weeks ago, and she didn't mention any click so I'm hoping the defect is just so minute that only a trained specialist could pick up on it. And my old cardio was an idiot, so I wouldn't be surprised if it were missed. Anyway, I'll know more after my follow up next week, but I'm pretty sure I have MVP.Mitral Valve Prolapse Syndrome seems to have a lot of overlap with POTS. I wonder how many of us have MVP... Quote Link to comment Share on other sites More sharing options...
Chaos Posted April 8, 2011 Report Share Posted April 8, 2011 I have mild mitral and moderate tricuspid valve regurgitation. My EKGs always read abnormal but the cardiologist doesn't seem to be concerned by it. Says it's what they expect to see with someone with EDS issues. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted April 8, 2011 Report Share Posted April 8, 2011 I was told 5 years pre-POTS that I had mild MVP. My very last cardio evaluation stated that I don't have it, so I don't know. I wonder if way back when they could hear it because I didn't drink the volume of fluids that I do now. But then again, I don't hold onto all those fluids, so...I have no clue! Quote Link to comment Share on other sites More sharing options...
autumn Posted April 8, 2011 Report Share Posted April 8, 2011 I've been dx'd with ventricular tachycardia and inappropriate sinus tachycardia, and my holters have also shown runs of SVT, PACs and PVCs. My heart is structurally normal, thankfully. I was misdiagnosed with MVP by my first cardiologist. He thought he heard a click when I stood up, but it was probably extra-hard heartbeats from standing up that did it. I've had two or three echos and a cardiac MRI, and they've all been fine. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted April 8, 2011 Report Share Posted April 8, 2011 Okay, where do I start? I was diagnosed with heart problems before I was diagnosed with POTS/dysautonomia...about a year in-between. I got really sick, went to Mayo Arizona, and found out that I had severe bradycardia and needed a pacemaker, dilated cardiomyopathy, atrial fib, and congestive heart failure. My ejection fraction was low, but not horrible, but I had many symptoms. I was put on Coreg and Coumadin (blood thinner). Things gradually improved over the next couple of years. I was diagnosed 5 months ago with a blood clot on my pacer wire that is planted in the right atrium of my heart, and am back on Coumadin for that. It is loosely attached, and swings every time my heart beats. Yikes! My echo at three months showed no change in the clot, and I go for my next echo in mid-May, at 6 months. My other pacer wire is obstructing my tricuspid valve, causing moderate to severe regurgitation. I think that's enough!Hope everyone is as well as can be~Cheers,Jana Quote Link to comment Share on other sites More sharing options...
sj75 Posted April 9, 2011 Report Share Posted April 9, 2011 i have pretty much every time of atrial arrhythmia. Had an ablation in 06 which made everything 200x's worse.x Quote Link to comment Share on other sites More sharing options...
enko Posted April 12, 2011 Author Report Share Posted April 12, 2011 Thank you all for replying Libby,I have similar problem. One cardiologist said she heard murmur, but second one said he heard nothing. The first one listened to my heart while I was laying down flat, second one while I was sitting. Maybe that has to do something..? But at least my ultrasound showed MVP, I'm "on the safe side" so they can't contradict that. Can't they? Anybody have AV blocks by Weckenback/Mobitz? What is that? Recently one doctor refused to perform autonomic system testing on me because I have those (in my sleep).. Quote Link to comment Share on other sites More sharing options...
Brassmuse Posted April 16, 2011 Report Share Posted April 16, 2011 Yep - I have MVP; diagnosed at age 25 after echo and holter. It wreaks havoc on my NCS. CheersKelly Quote Link to comment Share on other sites More sharing options...
enko Posted April 17, 2011 Author Report Share Posted April 17, 2011 Brassmuse,what do you mean under "It wreaks havoc on my NCS"? Quote Link to comment Share on other sites More sharing options...
Brassmuse Posted April 23, 2011 Report Share Posted April 23, 2011 I've noticed that when I experience an increase in palps and irregular heart beat that I get extremely dizzy, lightheaded...which for me brings on nausea/sweating/pre-syncope. It gets quite bad actually and I have squat or go supine more frequently than usual. I have less NCS symptoms when my heart is not doing the MVP flipflop what do you mean under "It wreaks havoc on my NCS"? Quote Link to comment Share on other sites More sharing options...
samannran Posted April 23, 2011 Report Share Posted April 23, 2011 I have MVP with regurgitation & tricuspid regurgitation. I also had an ablation in 2003 for AV nodal re-entry tachycardia. My doctor said having heart disease makes the dysautonomia even worse. We know that! Quote Link to comment Share on other sites More sharing options...
Chrissy Posted April 23, 2011 Report Share Posted April 23, 2011 I have MVP and sinus tachycardia. There is some debate as to whether I have a murmur and/or an arrythmia. Quote Link to comment Share on other sites More sharing options...
enko Posted April 23, 2011 Author Report Share Posted April 23, 2011 Do your doctors connect MVP with dysautonomia or treat it separatedly? Quote Link to comment Share on other sites More sharing options...
Chrissy Posted April 23, 2011 Report Share Posted April 23, 2011 My current doctor connects the two. Quote Link to comment Share on other sites More sharing options...
samannran Posted April 23, 2011 Report Share Posted April 23, 2011 My doctors treat them separately because I had dysautonomia long before MVP. Also, MVP runs in my family, but I'm the only one with dysautonomia. Quote Link to comment Share on other sites More sharing options...
enko Posted April 24, 2011 Author Report Share Posted April 24, 2011 Anybody with MVP using magnesium? Thinking to start taking it, but I'm not sure will it do more bad things than good.. Quote Link to comment Share on other sites More sharing options...
Brassmuse Posted April 27, 2011 Report Share Posted April 27, 2011 My doctor connects the two. Quote Link to comment Share on other sites More sharing options...
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