Victoria Posted April 6, 2011 Report Share Posted April 6, 2011 Prior to initiating Claritin, Benadryl, Zantac & Zyrtec I was unable to remain vertical. An occasional trip to the grocery store etc., but I always had to cut my trip short because I got too symptomatic. I also couldn't stand in one place to to dishes, etc. I went to the mall with my sister Monday and was on my feet from 8 a.m. to 10 p.m. (not kidding) and I still felt decent by 10:30 p.m., and not too bad the next day! I did have some heavy symptoms here and there while shopping but I was able to recover and carry on.Could I be experiencing a placebo effect, or does this really mean I have the adrenergic form with MCAD? I've never had a placebo effect before except for the occasional coincidence of "having a good day or two" after initiating a new drug for whatever my diagnosis was at that time. My symptoms always came back after a day, maybe two.This is almost too exciting for me to comprehend and believe. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted April 6, 2011 Report Share Posted April 6, 2011 Hi Victoria~Are you taking all of the meds you listed? Did you start them all at once or gradually over time? I know that Benadryl can give me a little relief, but also makes me very sleepy.Hope you're well, and see you this summer in Iowa.Cheers,J Quote Link to comment Share on other sites More sharing options...
Victoria Posted April 6, 2011 Author Report Share Posted April 6, 2011 I started taking them gradually and they help immensely. I'm not 100% and I don't feel consistently well, but wow, what a difference. I don't really believe this is a placebo effect, but I am afraid they will stop working. How are you doing? Yes, I hope to see you this summer!Victoria Quote Link to comment Share on other sites More sharing options...
sue1234 Posted April 6, 2011 Report Share Posted April 6, 2011 I don't think there is anything "placebo" about that! There is too much of a difference between being vertical to being upright for the whole day. Bet you had a wonderful time! Quote Link to comment Share on other sites More sharing options...
issie Posted April 6, 2011 Report Share Posted April 6, 2011 How are you taking all these? Some in the a.m. and some in the p.m.? Quote Link to comment Share on other sites More sharing options...
Victoria Posted April 7, 2011 Author Report Share Posted April 7, 2011 Thank you so much, sue. I did have a wonderful time. I'm paying the price a bit today, I guess I shouldn't have pushed myself as hard as I did. But I'm thankful to be on my feet, even if it is part time. Quote Link to comment Share on other sites More sharing options...
Victoria Posted April 7, 2011 Author Report Share Posted April 7, 2011 How are you taking all these?I take Claritin and Zantac in the a.m., Zyrtec in late afternoon, and Benadryl at bedtime. Quote Link to comment Share on other sites More sharing options...
targs66 Posted April 7, 2011 Report Share Posted April 7, 2011 Funny you should say this - !I've only very recently started taking a tiny bit of Benadryl at night, based on some things that I've read about mast cell disorders. I've not been diagnosed with MCAD, and had never heard of it until I read some things on this forum, but thought maybe it was worth a try (why not??). I do feel a bit better - still very tired, but my head has been a bit "clearer" over the past few days. I ordered OTC Zantac and Zyrtec and will see if they help (the Benadryl definitely makes me too sleepy to take during the day).Please, please keep us posted on your progress. I'm very interested to see how you get on. I'll do the same.Fingers are crossed for you!!! Quote Link to comment Share on other sites More sharing options...
Sarah4444 Posted April 7, 2011 Report Share Posted April 7, 2011 I suspect it's the medication, but in any case I really hope it continues! Keep us posted. Quote Link to comment Share on other sites More sharing options...
Victoria Posted April 7, 2011 Author Report Share Posted April 7, 2011 Thanks you guys. I'll stay in touch. Quote Link to comment Share on other sites More sharing options...
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