mynagirl Posted March 7, 2011 Report Share Posted March 7, 2011 Rawr! Terrible headache today and had the same one day last week. I don't remember this being a Mestinon side effect before. It's like lead weights on one of my eyeballs. It feels like a "chemical" headache if that makes any sense, not a normal stress/sinus/tension headache. Is this just an amazing migraine my body has decided to bless me with today? Anyone have migraines with your dys? Anyone have headaches with Mestinon?Hoping everyone is having a good day :-)Marie Quote Link to comment Share on other sites More sharing options...
janiedelite Posted March 7, 2011 Report Share Posted March 7, 2011 How's your BP? Mestinon made my BP too high, which caused a headache similar to the one I got with Florinef (which also made my BP too high). Quote Link to comment Share on other sites More sharing options...
mynagirl Posted March 7, 2011 Author Report Share Posted March 7, 2011 The same thought occured to me - I checked it when I was standing up and had been walking (before I went to bed) and it was 100 / 70 with a HR of 91. Not bad at all for walking around. Quote Link to comment Share on other sites More sharing options...
sandymbme Posted March 7, 2011 Report Share Posted March 7, 2011 I didn't get any more migraines than I usually do when I was on mestinon, buts I definitely have more migraines on my bad POTS days. My migraines were actually the first presenting symptom I had that led to my diagnosis. I had a migraine that last for 9 months straight, really thought I was losing my mind. Dr. Stillman, who is a neurologist at the Headache and Facial Pain Clinic at the Cleveland Clinic, noticed my unusual vitals (high HR and low BP) and sent me for a TTT. Sure enough, I flunked! He explained to me that "vascular" migraines are common in pots patients, due to both the low blood pressure and the tachycardia. He recommended vasoconstrictors like DHE for rescue meds. If you keep getting them, definitely follow up with your neurologist, or get a referral to one.Sandy Quote Link to comment Share on other sites More sharing options...
futurehope Posted March 8, 2011 Report Share Posted March 8, 2011 Mestinon gave me a headache. I couldn't use it. Quote Link to comment Share on other sites More sharing options...
houswoea Posted March 8, 2011 Report Share Posted March 8, 2011 If I don't eat before I take mestinon it drives me nuts. Don't know if I would classify it as "headache" but it makes my head spin and makes me dizzy and my eyes can't focus and my thoughts are muddled(among other things unrelated to headaches).Maybe you need to eat more before you take it? Quote Link to comment Share on other sites More sharing options...
iheartcats Posted March 8, 2011 Report Share Posted March 8, 2011 I never head a headache from Mestinon - just 'potty' issues for a few days when I started. How are your sinuses? I get horrible allergy headaches! And hormonal headaches at the end of my pills every three months. Also...sometimes crazy smells can trigger them for me. Weird, I know. Quote Link to comment Share on other sites More sharing options...
mynagirl Posted March 9, 2011 Author Report Share Posted March 9, 2011 Funny you mention it, I'm sneezing my head off the last two days. But I swear that was not a sinus headache! But who knows, maybe it was after all. I took a benadryl and some Advil and I felt better. So maybe its just allergies. But smells can trigger headaches for me too - the laundry softener aisle in the grocery store is the worst offender. And smells triggering is a migraine thing, isn't it? Sigh...so many fun symptoms. Thanks everyone for all your helpful replies!! Quote Link to comment Share on other sites More sharing options...
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