Jump to content

Finally Got A New Diagnosis...

Recommended Posts

My doctors FINALLY diagnosed me with Chronic Fatigue Syndrome. I have know for awhile that i might have it though. It seems like i have more CFS than POTS at the moment. Does having POTS automatically make you have CFS or are they completely separate?

i am happy that i have answers now ( The epstein barr virus is causing the chronic fatigue) but at the same time i am worried that now i know whats wrong, i will never get better. Can you recover from CFS?

Sorry if things dont make sense, today is a really bad day for me

Link to comment
Share on other sites

I have had CFS for 18 years. Just got POTS two years ago. I take great supplements on a schedule with a CFS doctor. I do great with the fatigue. DRibose and CoQ10 are good for me. I take a lot of things that help.

You can get much better and usually stress can make you feel worse, relapse. Many conditions are things you do not get a cure with. You live with it and deal with by doing things that keep you healthy. Do not get sad about having CFS. Learn all you can just like with POTS.

Getting great sleep is number one. Getting blood tests for B12, vit D3, thyroid etc. and having a good doc. is important. For me, the supplements have made my CFS no problem. My POTS is my problem now and it is improving.

I take supplements for my immune system to keep me healthy.

Link to comment
Share on other sites

Wow I was watching a program on the first women's soccer team (American) and one of those players developed chronic fatigue and it reminded me so much of what we go through with POTS with her crashes she would have.

I think it sounds like hope for you Dani.

Link to comment
Share on other sites

Every Doc is different. My main doctor thinks my CFS is a result of mu Dysautonomia. I think they often go hand in hand and POTS can certainly cause CFS. My doc said that with my form of POTS the fatigue is worst thing to try to treat. I am so tired of napping. :(

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Create New...