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nooniegirl

Uk Potsies

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Hi

I used the forum a while back when I was struggling to get a diagnosis. I am now an offical potsie and wondered if there are any London or UK people I could bombard with questions?? All help much appreciatd :)

Jess

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im a uk potsie and there are a number of us on here now. Im probably not the best person to bombard with questions as im still on a rather steep learning curve myself but i know a few of the others would be great for that.xx

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Hi Jess,

Haven't heard from you in a while but we PM'd a while back.

Please feel free to bombard me, maybe able to give a little more help now further down the line!

Mel.

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it would be nice to have a list of potsies from the uk on here as i never know whos from where and the care is so different in the uk to the us. Im in the east midlands.x

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I'm on the South coast of the UK and have had POTS pretty much my whole life but only suffered very badly with it for 5yrs and only diagnosed then too.

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Hi!

I too used the forum when I was pre-diagnosis and found people to be extremely helpful. I'm in Derbyshire, UK. There's a facebook group called POTSUK started by a girl in Sheffield that's also helpful and friendly too.

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Hi,

Im from the UK and I am in the Southwest. I am without diagnosis and struggling as I now seemed to have developed gastroparesis as well now. My main battle is that my GP doesn't believe Pots exists and that he believes your heart rate going from 80bpm resting to 135bpm on standing is completely normal. I bought the book the fainting phenomena and lent it to him, so I await his response.

I am currently waiting for tests on the gastro symptoms.

I find this forum so helpful its my lifeline and the only way that I know I am not going mad.

Rach

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