wareagle Posted December 8, 2004 Report Share Posted December 8, 2004 (edited) Hi all! Just wanted to ask about Midrodine. I'm currently on a small dose of Florinef..and see my doc. in a week. He has mentioned Midrodine before and I have a feeling he'll want to try me on it soon so I wanted to know about specific experiences with it. I remember Gena saying that they weren't prescribing it any longer in Birmingham, AL and that concerns me. Just wonder if it's "safe"? Thanks for any info. ya'll can give! Michele Edited December 8, 2004 by MightyMouse Quote Link to comment Share on other sites More sharing options...
Meghan Posted December 8, 2004 Report Share Posted December 8, 2004 Do you mean midodrine? Like ProAmatine (that's the brand name)? If that's what you are referring to, I take it. I have been taking it for about a year now and have not experienced any negative side affects. It has helped a lot to keep my blood pressure up and reduce syncopal episodes and dizzyness. I am very thankful for this drug!I have not heard anything about doctors no longer prescribing Midodrine in Birmingham, Al. Actually, if they are I would be curious to hear why. As far as I know, it's safe... but perhaps they have found contrary information?~ Meghan Quote Link to comment Share on other sites More sharing options...
wareagle Posted December 8, 2004 Author Report Share Posted December 8, 2004 Yes..Midodrine..sorry I mis-spelled it! Any way to edit the post and change to correct spelling? Thanks for the input! Quote Link to comment Share on other sites More sharing options...
Jaime Posted December 8, 2004 Report Share Posted December 8, 2004 I am on Midodrine. The negative side effects that I have noticed is goose bump, kind of a hot and cold sweat like when you have the flu, and my whole body itches for about 30 minutes after I take it...I swear the people who sit behind me in class probably think I have lice. It definetely gives me a boost in BP. Also, my doc recommended to take it on an empty stomach, but said if the side effects were too much then take it with food and that would decrease the side effects, but it also decreases the effectiveness of the Midodrine. The midodrine still works on an full stomach just not as much as on an empty stomach. Jaime Quote Link to comment Share on other sites More sharing options...
corina Posted December 8, 2004 Report Share Posted December 8, 2004 Hi Michele,I've been on midodrine for some time and it really helped me. Side effects were a very tingling feeling wherever i touched myself and very cold sensations. I also kind of overreacted (as I do from POTS, I cannot control that, some meds help controlling that, midodrine didn't). I stopped using it because in my country it isn't paid for and it's VERY expensive (at least it is in the netherlands). I'm trying new meds since then and will stick to the one that works for the best. That might be midodrine, I'll accept the side-effects than but have to try other meds first. Well, hope this helped you,Corina Quote Link to comment Share on other sites More sharing options...
Ernie Posted December 8, 2004 Report Share Posted December 8, 2004 This is my miracle drug. Cannot remain upright without it. Only side effect is goose bumps and more sensitive to cold weather. Ernie Quote Link to comment Share on other sites More sharing options...
briarrose Posted December 8, 2004 Report Share Posted December 8, 2004 I tried it and started with the goosebumps. By the second day I was in an intense itch all the way to my feet and Dr. Grubb told me to stop usage. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted December 8, 2004 Report Share Posted December 8, 2004 Wareagle, I fixed the title of your post for you. --Nina Quote Link to comment Share on other sites More sharing options...
Merrill Posted December 9, 2004 Report Share Posted December 9, 2004 When I was first diagnosed, midodrine was mentioned as a possible med that could be prescribed along w/beta blocker. I haven't tried it... but I've a question: I noticed that several of you said it helps with the dizziness and gives your bp a boost. (Dizziness and fainting being side effects of low bp.) What if you don't have low bp--and typically only suffer dizziness when changing positions too quickly? Is midodrine still prescribed? (I have pots but my bp, while on the low side of normal, is normal nonetheless--and my bp doesn't change dramatically upon standing.)Would florinef be a better drug to try in that case? Or do the folks on florinef suffer also with low bp and dizziness and fainting etc?Thanks all--I've been wondering about this for a while!m Quote Link to comment Share on other sites More sharing options...
Ernie Posted December 9, 2004 Report Share Posted December 9, 2004 Hi Merrill,I think that you have to try both of them and see which one is the best for you.Ernie Quote Link to comment Share on other sites More sharing options...
Eillyre Posted December 9, 2004 Report Share Posted December 9, 2004 Hi Michele! Just thought I'd add my experience with Midodrine. I'm so glad that it works for someone -- wish I had been one of them! Unfortunately, I was practically bedridden for two weeks on the stuff. I had just suffered a big downturn in health despite changing doses of Florinef (which had initially made some improvements in quality of life), so my cardio prescribed Midodrine. After two weeks of misery (I don't remember much of the experience except that I was afraid I wasn't going to die -- my mom says I looked like a complete zombie lying in bed), the cardio was getting a bit worried, so she took me off of it. From what I've read about Midodrine, I and my reaction are part of a small minority -- most people seem to respond really well. I guess it's just another one of those (many!) things you have to try for yourself -- there's nothing like dysautonomia to make you feel like a real individual, huh?! Angela Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted December 10, 2004 Report Share Posted December 10, 2004 dizziness can occur with normal blood pressure - infact at times my dizziness was profound while i had normal blood pressure measurements - but was suffering palpitations and dizziness Quote Link to comment Share on other sites More sharing options...
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