Hypersomnia

[stacdliw]

Does anyone else suffer from hypersomnia? About every two weeks, I will sleep 15-18 hours in a day! I'm in a deep sleep too, where I'm hard to arouse. Many times I will force myself out of bed after 14 or 15 hours, then after 30 minutes, I'm so tired, I go back to bed and sleep another 3 or 4 hours. When I do get up, I'm in a major brain fog and listless. I've had one of these days today. I slept for 11 hours, went back to bed after being up for 1 hour, slept for another 3.5 hours, and want to go back to bed now!

I looked up hypersomnia and an article said that it can be caused by autonomic neuropathy. Of course, I don't think there is anthing that can help. I feel like such a bum though. Anyone else suffer from this?

[juliegee]

Hi Bev-

YES, my son whose 17 y/o now. He can easily sleep 15-16 hours at a shot. This is new since he became ill at age 12. As a child, he barely slept at all . Among his DX is chronic fatigue syndrome. He takes Concerta to help with this & uses caffeine during the school year. Like you, he is almost impossible to rouse & drenched in sweat upon awakening. He says it feels like he is coming out if general anesthesia.

Sorry you deal with this as well

Julie

[Christy_D]

My son goes back and forth with insomnia and hypersomnia. Right now he is dealing with insomnia more so. When he has the hypersomnia, he can be extremely hard to wake up and is disoriented when he starts to come around.

[stacdliw]

I have had CFS for 16 years, but I never had hypersomnia like this. I do have sweats when I sleep though.

I, too, wane back and forth between insomnia and hypersomnia. Tuesday night (morning) I didn't go to sleep until 6:45am! It just seems my sleep patterns are all messed up!

[Crow]

Sorry that's happening. It's not fun.

I bounce between insomnia and sleeping forever like this.

Tried dietary changes to no affect.

Seems like since I've been on cymbalta I'm crawling more into the sleep hole.

[HopefulLady]

I have those same issues .. I can go from normal sleep 6-8 hours a day .. to 12-14 hours a day sometimes longer where I just can't get up .. and then I can't sleep at all sometimes .. I thought the effexor was causing my sleep schedules to screw up like that. I know insomnia is a side effect of the drug. If I sleep too long I wake up with the worst headaches on earth. I notice closer to my period I tend to sleep really long hours.

[dianne.fraser]

Bev

I'm sorry to hear that you're so unwell right now.

I also have periods of insomnia and normal sleep interspersed with sleeping too much. I tend to over-sleep when I'm much more symptomatic generally, but never more than 14 hours at a stretch, and I always feel much better afterwards - I figured that sleep was my body's way of getting back into balance.

I'm much more likely to lay awake after a night sweat or after over-heating without a sweat - if these problems recur, I stop them with ibuprofen (I've started over-heating again, so I picked up some ibuprofen today).

Way back before I gave up exercise, I also had post-exercise collapse (I'd slump over without losing consciousness for 5 min or so) which was always followed by the overwhelming need to sleep - I literally couldn't keep awake, even if it was 10am and I'd just had a full nights sleep. I'd usually sleep really deeply for 4-5 hours.

With best wishes

Dianne

[DYSarray]

I go through the same thing with the sleep. I can wake up in the morning and within 3 or 4 hours I HAVE to sleep again whether I want to or not. I also am FREEZING cold when this happens. After waking up for the second time in the day in another couple hours and I will sleep another 5 or 6 hours, wake up for a couple and then back to sleep again. It doesn't impact my being able to sleep at night though. I can go a couple weeks sometimes without the excessive sleeping and then wham it is back again. I haven't found anything that makes it worse or better.

[Guest tearose]

I recently managed to eek out energy to do an incredible training session. It took alot of energy to do that and I needed two days afterwards of 8-9 hours of sleep and then two hours of naps.

I only have spells of this.

Is it just periodic in your son?

If it is in a "child" even at 17 I would wonder if it were a growth spurt contributing to this as well.

[potsgirl]

I go between insomnia and wanting to sleep almost all of the time. Sometimes it's okay because it's how I can get through the day when I'm really feeling awful. I get up early, around 5-6 am, take a nap around 2-3, and then back to bed between 4-6, where I read for an hour or so and then am asleep by 7-7:30. Thank God for books and and recorded tv programs!

Hope you feel better soon.

Cheers,

Jana

[nmorgen]

Hi,

I also suffer from this. I have to sleep at least 12 hours to function. Right now I am going through insomnia.

[lieze]

I actually did this for a year or a little more when I was first married.

I worked nights my husband worked out of town so I had no reason to get up or so I thought.

I would sleep the entire day and not get up til sometimes 8:30-9 o'clock at night and get up shower and work.

The sleep was addictive. If I woke up I would get drowsy again and go back to sleep.

I felt drunk and half out of it.

I could not stay up after my shift was over.

Sometimes I would try to go to the grocery after work cause I literally was not living.

If I stayed up for more than an hour after my clock out time I would start to get really dizzy and feel like I had to go to bed, get a headache, feel sick.

I lost a lot of weight during that time. I was down to 90? pounds-I basically only ate when I took a supper break at work.

I don't remember what I did on days off or how I ever weaned myself out of that routine but it was embarrassing. If anyone came to the door I was often in my robe if I got up to answer it.