rymac Posted June 22, 2010 Report Share Posted June 22, 2010 I have been in the St. Louis area for a while but have not had much luck finding a doctor. I went to one regular doctor and he tried to discredit my entire diagnosis. I had my medical records from the Mayo Clinic and Birmingham from Dr. WatkinsMy weight has also dropped down to the lowest it has ever been. I don't know why because I don't feel that bad for someone with dysautonomia. My weight is so low it scares me. I had not weighed myself in a long time. I have a limited diet but I do eat. Does anybody know how we figure out how much salt we can have per day. I am looking back in my medical records and can't find it. Thank you to anyone who can help me. Quote Link to comment Share on other sites More sharing options...
Christy_D Posted June 22, 2010 Report Share Posted June 22, 2010 Dr Kinsella at Forest Park Hospital is a neuroligst who also specializes in autonomic dysfunction. I live in St Louis and didn't discover this doctor until my son was already being treated by doctors in Cleveland. After our appt in Cleveland in August, I plan on making an appt for my son to see him. It would be great to have a local doctor rather than the 9 hour drive to Cleveland. I have heard very good things about him too. Quote Link to comment Share on other sites More sharing options...
Tommyhoney Posted June 22, 2010 Report Share Posted June 22, 2010 I was wondering if you had checked Wash U....it seems like awhile back there was an autonomic doc there. As far as the salt goes, I don't know you're exact symptoms, but I've been told anywhere from 6-13 grams daily, depending on which doc you speak to. Good luck in your search, let me know how it turns out, I'd much rather drive to Stl as well. Quote Link to comment Share on other sites More sharing options...
green Posted June 23, 2010 Report Share Posted June 23, 2010 Dr Kinsella at Forest Park Hospital is a neuroligst who also specializes in autonomic dysfunction. I live in St Louis and didn't discover this doctor until my son was already being treated by doctors in Cleveland. After our appt in Cleveland in August, I plan on making an appt for my son to see him. It would be great to have a local doctor rather than the 9 hour drive to Cleveland. I have heard very good things about him too.I have also seen Dr. Kinsella and I really respect him. He spent more time with me and asked more probing critical questions than any one else I've seen about this problem. Also, his advice was generally good. Quote Link to comment Share on other sites More sharing options...
rymac Posted July 1, 2010 Author Report Share Posted July 1, 2010 Thank you to everyone for the information on Dr Kinsella. I don't know if I really have a reason to go see a specialist other than being worried about my low weight. I don't think there is much i can do about it. I did find my records from Mayo Clinic and Dr Fealey recommended I take 10-15 grams of salt a day. I thought that was kind of high but he also recommended 2 liters of fluid a day. 'thanks again,bluesman Quote Link to comment Share on other sites More sharing options...
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