firewatcher Posted June 9, 2010 Report Share Posted June 9, 2010 Let's see, before my "formal diagnosis," I was mislabeled as having/being:bipolarasthmaanxiety disorderattention seekinglazydeconditionedvery pleasant and in no acute distress. Quote Link to comment Share on other sites More sharing options...
Tommyhoney Posted June 9, 2010 Report Share Posted June 9, 2010 StressedAnxietyPTSDChronic Sinus InfectionAnxietyPTSDAnxietyStressEtc.oh- drug seeking, forgot that one. Bah. Quote Link to comment Share on other sites More sharing options...
erickamcc0523 Posted June 9, 2010 Report Share Posted June 9, 2010 The most common one is psychosomatic, but I've also been dx'ed as bipolar (rapid cycling and very uncontrolled even with meds), anemia, migraines, anxiety, *JUST* GERD (and not gastritis and Barrett's Esophagus along with that), runner's knee (when I was 10, and I didn't even run back then since I got lightheaded)... I was also diagnosed and treated wrong for patellar subluxations (I had a lateral retinacular tendon release... my only non-stretchy tendon in my knee, so know they're even more messed up before the surgery), which has made the POTS worse. I had my last knee surgery Nov 09, and was dx'ed with POTS Jan 10. I had POTS symptoms before surgery, but they were exacerbated by the trauma of surgery... so what is really frustrating is that if I'd been dx'ed with EDS before my surgery, I wouldn't have had surgery, my knees would be pretty terrible, but not on the level of horrible they are right now, and I would have as many POTS symptoms. I'd also forgot drug seeking, too... It's not my fault that EDS HURTS, especially when knees and hips are constantly popping in and out of place. But, no.. tylenol should take care of that pain, never mind my knee has not been able to stay in place for the past 3 days straight unless I'm wearing the immobilizer.I know there are many more mis-diagnoses I've been given, but I'm really trying to forget about all of the wrong diagnoses and horrible doctors who gave them. What matters now are the 3 good doctors and diagnoses I have... If I were the type, I believe that I could have a nice lawsuit, but since I don't relish talking to lawyers (I hate them even worse than doctors... with good reason, long story) I just go into a new doctor with the knowledge that I most likely know more about my own illnesses than he does and pray that I'm pleasantly surprised that, no, for once they know more. That's happened only once, but if it can happen once, it can happen again. Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted June 9, 2010 Report Share Posted June 9, 2010 This happens through out history, when doctors do not have a test to prove why you're feeling bad it's all in your head. Psychosomatic is all they have left when every test they know to run is neg. Quote Link to comment Share on other sites More sharing options...
sugartwin Posted June 9, 2010 Report Share Posted June 9, 2010 Let's see. I was mis-diagnosed with:bipolar disorderasthmafibromyalgiaanxietyautism (this was my fave--diagnosed autistic at 28 years old!)malingering"psychosomatic"hysteria/conversion disorderdeconditioningdrug-seekingchronic fatigue syndromeI think malingering/drug-seeking was the worst, because then the nurses treated me awfully. They wouldn't help me off the floor when I fell, they wouldn't help me get cleaned up, they wouldn't give me anything for pain. I was so miserable that I contemplated discharging myself AMA. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted June 9, 2010 Report Share Posted June 9, 2010 I've been incredibly lucky. It took a long time, but my first diagnosis was my heart problems. A year and a half later, I was diagnosed with POTS. Believe me, I know how fortunate I am. I now have a really good internist, gastroenterologist, and cardiologist (still need to find a good neurologist). I even like my dentist! As I've been reading the posts about people losing their doctors, it's made me realize just how happy I should be. And, I've never been diagnosed with anxiety/depression, etc. Perhaps this is because I've been on an SSRI for the past 10 years.Good luck to you all in finding good doctors!Jana Quote Link to comment Share on other sites More sharing options...
Christy_D Posted June 9, 2010 Report Share Posted June 9, 2010 For my son it went:Abdominal MigrainesMigrainesHe just doesn't want to go to schoolAnxietyAutonomic Dysfuntion(no tests ran)Depression/Anxiety(even after psychologist ruled this out)POTS after TTT + Gastroparesis + Small Fiber NeuropathyPlus-Sleep Study done-Restless Leg Syndome-Told not to nap during the day even though he is so sick(Took 3 years for correct diagnosis. We saw 1.Gastroentrologist who referred us to- 2.Neurologist who referred us to-3.Biofeedback Internist who referred us back to- 4.Gastroentrologist who referred us to- 5.Psychologist who referred us to 6.Cardiologist who diagnosed but was no help-Pediatrician referred us to- 7.Diagnostician(he was definietly no Dr. House). I then called Cleveland.)Christy Quote Link to comment Share on other sites More sharing options...
Guest humanb4monitor Posted June 9, 2010 Report Share Posted June 9, 2010 I got:you areSOOO weirdWhy don't you sleep right?why don't you eat right?why can you do THIS but not follow through with that?calm downWAKE UP!eat better and see a shrinkwhy can YOU take that med? everyone else can!Be like everyone else.always a "you do NOT fit" BUT the irony is....good people think I am ducky.Losers don't.mmm.....? Quote Link to comment Share on other sites More sharing options...
Guest humanb4monitor Posted June 9, 2010 Report Share Posted June 9, 2010 oh..and IF You laugh and cry within like 4 minutes:ARE YOU MANIC!?can you imagine someone just blurting that out!I read you can Such dismissla nd disreagrd.My evil doers.......they never ever wanted to investigate my 'invisibles' after I was diagnosed with POTS. Even though all the data answered eveything! It would blow people's MYTHS about us wouldn't it?Yet the incison on my back can be SEEN so people like me better now.&$%#$&@ Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted June 9, 2010 Report Share Posted June 9, 2010 Postpartum DepressionAnxietyPanic attacksNothing is Wrong with you why can't you accept that? Quote Link to comment Share on other sites More sharing options...
juliegee Posted June 9, 2010 Report Share Posted June 9, 2010 I lOVE this thread. None of these were accurate, but some of my more memorable DXes include:-Autonomic Dysreflexia (Still in my records http://www.childrensmn.org/Manuals/PFS/Condill/038355.pdf)-Scleroderma-Addison's Disease-Ventricular Septal Defect-PAD-Stress-Anxiety-Angiodema-Cushings-Hepatitis-Marfan's-Loey's-Dietz Syndrome-Fibromuscular DysplasiaI just know I'm forgetting some..... Quote Link to comment Share on other sites More sharing options...
Nikki Posted June 9, 2010 Report Share Posted June 9, 2010 Anxiety..Stress..Allergies. Nothing serious, but I had no idea what was going through the doctors heads when that's what they came up with when I described my symptoms lol. Quote Link to comment Share on other sites More sharing options...
Guest humanb4monitor Posted June 9, 2010 Report Share Posted June 9, 2010 I asked for allergy testing once. I was sooo desperate!The doc looked at me....well..you know.Like I was a martian. (maybe I am )I said "If I was 10 would you look at me that way?"Since 2006 maybe, If I am abused on any level by a doc who is NOT 1 of my many hero docs, I will actually stand and say, "do not ever ever come near me again.'That has backfired a few times but....A Human Rights/ Civil Rights org is now going to bat for me against the creepiest guy EVER who TOOK a doc away that could have saved my health in so many ways. The great thing about this org compared to the CORRUPT State Med Board is docs are NOT allowed in your records with these people. They are allowed with Med. Boards. So they snoop back 100 years like little children to try and find others who 'found you difficult' so they can whine like babies.You will have ahuman Rights Commission in your state. Discrimination on on levels is whatthey deal with as well as refusal of treatment based on BS.The HR/CRight people travel and look at them and say Prove it?Show me times, dates, quotes where she did something so bad (slander) that you barred her.I have a movie on and the heoine just said:"I am different and you will never forgive me for that." Quote Link to comment Share on other sites More sharing options...
Jan Posted June 10, 2010 Report Share Posted June 10, 2010 VirusLymeMSMany other things were suspected but ruled out by tests. I was given IV antibiotics for Lyme, and IV steroids for MS before they were ruled out. Quote Link to comment Share on other sites More sharing options...
dawson20 Posted June 10, 2010 Report Share Posted June 10, 2010 Like POTSgirl I was very lucky - from the get go my symptoms were so severe as to be unignorable - no amount of 'anxiety' could make a persons blood pressure drop to undetectable levels within minutes of a TTT. I lucked out and within a few weeks of my symptoms starting I saw a neuro in the hospital who knew his stuff and had me on a tilt table in a matter of weeks. From there out treatment was underway.POTS was actually my 'misdiagnosis'... but it was all that fit at first. I have an awesome cardiologist who has been willing to turn over every stone - Most of the doctors I have seen over the years have either been open and honest about not having an answer, or have been willing to try treatments without solid answers. I am reminded from threads like this to be thankful for my team of docs. Quote Link to comment Share on other sites More sharing options...
yogini Posted June 10, 2010 Report Share Posted June 10, 2010 Just wanted to say that I love the term Dys-ed. It's PERFECT!!! Quote Link to comment Share on other sites More sharing options...
Chaos Posted June 10, 2010 Report Share Posted June 10, 2010 Great thread!MigrainesIBS Not IBS but we don't know what it is.AsthmaNot Asthma but we don't know what it is.You're just weirdWe all know you're weirdOh, that's just your body being weird againBipolar and then "not bipolar" Post-partum depressionGeneralized anxiety disorderPanic attacksPTSD but you don't have a history of traumaPre-birth nervous system damage (apparently from "hearing" my parents argue while I was still in-utero) Bleeding disorder.... but we don't know what it is.Hormonal disturbance... but we don't know what it is. A spiritual problem.. go see a healer in Argentina. NO, you're not hypermobile because your index finger only extends to 90 degrees. It doesn't matter that you can play jump rope with your arms and do a backbend with your head in front of your feet.The list could continue in the same vein for quite awhile.Mostly I've just avoided docs for a long time because I knew they weren't going to be a help and I got frustrated by the "looks" that implied I must be making it all up. I've done a lot of alternative therapies and even those people were baffled by my situation. Quote Link to comment Share on other sites More sharing options...
DizzyMe Posted June 10, 2010 Report Share Posted June 10, 2010 Straightforward Hypovolemia.(increase fluids for couple weeks and you will feel fine)Post Traumatic StressAnxietyVestibular Dysfunction Quote Link to comment Share on other sites More sharing options...
Rene S. Posted June 10, 2010 Report Share Posted June 10, 2010 Great post, Jenn!!I got:AnxietyMenopasual SymptomsAtipical DepressionAnorexia (turned out to be gastroparesis!)PTSD (from going through a divorce, moving, being alone)The best was from an ER dr who spent two minutes with me and wrote on my discharge papers: NEUROTIC!!This was after being diagnosed with dsysautonomia. I still don't have the right drs and half don't get it! Heck, I don't get all this myself. Quote Link to comment Share on other sites More sharing options...
DEBRAA99 Posted June 10, 2010 Report Share Posted June 10, 2010 My thought on this..... Let's start "labeling" the doctors. Here's my list:IncompetentMaybe impotent and that's why the attitudeArrogantBiasedMoney hungryplugged ears(since they don't seem to be able to listen to a ##### thing we saygraduate of online physician programPower kick syndromeCare to add any that I may have missed? Quote Link to comment Share on other sites More sharing options...
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