Anyone See Frederick K. Nahm Of Greenwich Ct??

[Dawnie]

Hi all,

I'm new here and trying to figure out if i should go to a specialist on Dysautonomia. I have gastroparesis, colonic inertia and POTS and have had breathing issues of late. I am on fludrocortisone but i would like to try the other drug MESTINON. Has anyone been to the see Dr. Nahm. If so can you tell me about your experience with him. Also i'd be interested if anyone has a recommendation for another dysautonomia specialist in Westchester ny or the nyc area. I have the version that is caused by autoimmunity and many autoimmune illnesses. I do have a regular neurologist but i have found that sometimes going to someone who is a specialist in the condition that you have can be very helpful. Anyway, any help would be greatly appreciated. Thanks all...:-)

-Dawnie

POTS, CIDP, APS, Lupus, Sjogren's Syndrome

[lieze]

Hi Dawn,

I'm not from your area but also wasn't sure about seeing a specialist.

My issues started right after a viral infection so I guess I'm kind of waiting to see if I'm in the category that has almost a full recovery.

So far I guess I do feel better.

About the breathing though this has been something that I have noticed too and it has been recently brought to my attention that I have am having histamine reactions.

I get a sensation of tightness in my chest and sometimes it feels as if my throat is closing up on me. I have been having the tightness off and on in the chest for over a year now but just now found out what was happening after an ER visit.

I don't know if this is what you're experiencing or not but thought I'd give you a heads up just in case. My doctor wants to try me on maybe both h1 and h2 blocker.

She really emphasized starting either Zantac it was actually Pepcid she ordered first trying that for a week and seeing if my symptoms improve.