Birdlady Posted May 11, 2010 Report Share Posted May 11, 2010 P.S. In my "road to diagnosis"... my first big suspect based on symptoms was Adrenal Insufficiency. To this day, I still don't know how that is tested for... and it seems that it only "half-exists" in medical world (as opposed to Addison's which is extreme form).One thing you can do is a saliva cortisol test that has you collect at 4 different times during the day. That will give you enough info on whether or not you need to proceed further with an ACTH Stim test or other cortisol testing via blood. Most endos won't "accept" the results of these saliva tests though so be forewarned. It always amazes me that they trust saliva results when it comes to Cushing's Diease (high cortisol), but they don't trust them for Adrenal insufficiency. Good luck! Even though HC has helped me with the fatigue and burn outs I used to get, my POTS is still as bad as ever. Quote Link to comment Share on other sites More sharing options...
erik Posted May 11, 2010 Report Share Posted May 11, 2010 Cool. So, I will probably pursue the saliva test kind of privately or with my GP... then based on the results I will know whether to press hard for endocrine specialist and more advanced stim tests. I am "timid" because it is lousy to ask for some special test and have it negative... especially in the context of having one of medicine's "mystery diseases"! Must tread lightly and tactfully... like Ninja patient!!! Quote Link to comment Share on other sites More sharing options...
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