ladyt Posted March 20, 2010 Report Share Posted March 20, 2010 Hi..have noticed that endo docs are mentioned here at times.. ust woundering what sort of docs thay are and what they can do for pots ..?I am now referred to one becouse of some cyst/mucsel nods (dont knoe what hey can do about that but...)..So maby when i am ther if the doc is opendminded i can ask for some help whit pots stuff.. But what can they do..? would be greatfull for all inputs either u have been to one ore not...=) Quote Link to comment Share on other sites More sharing options...
Simmy Posted March 20, 2010 Report Share Posted March 20, 2010 An endocrinologist is basically a hormones or body chemicals specialist. I saw one early on before my diagnosis who examined me, couldn't figure out my symptoms and advised me to go see my GP with my problems and maybe start on anti-anxiety meds. They just didn't learn about POTS when he was in medical school.It really doesn't matter if you see an endocrinologist, electrophysiologist, internist, cardiologist, or neurologist, as long as they're knowledgeable about and experienced in POTS. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted March 20, 2010 Report Share Posted March 20, 2010 My endocrinologist was the one who pinpointed my autonomic dysfunction...within 10 minutes of me stepping into his office. IF you get a doc who has seen a lot of patients (mine has been practicing for over 40 years) or someone fresh out of medical school, they will know about autonomic dysfunction because it is very common with endocrinological disorders: diabetes, hypothyroidism, addison's disease, etc. This is the doctor who is supposed to know all the ingredients in our chemical soup and how it effects our organs. A neuro-endocrinologist (good luck finding one!) specializes in the endocrine organs of the brain (pituitary, pineal gland and hypothalamus) and how all these chemicals and hormones regulate the brain and body together. Unfortunately, if you get a general endo who is happy treating diabetics and isn't obsessive about strange medical conditions (like mine) he will look at your thyroid, check your sugar and send you on your way. Quote Link to comment Share on other sites More sharing options...
ladyt Posted March 21, 2010 Author Report Share Posted March 21, 2010 hi.... Hmm... small country, so docs doesnt see much of sebras, thats to say they think of all as hores no matter what so... But u never know i gess..Do u know of tests one should ask for that might be helpfull..?hope u all had a nice weekend Quote Link to comment Share on other sites More sharing options...
collies1974 Posted March 23, 2010 Report Share Posted March 23, 2010 Endocrinologists are pretty helpful and great if you get a good one. He/she can check cortisol levels, sugar, thyroid and hormone levels in general. They are usually the scientists of the glandular and hormone issues people have. They can be very helpful with POTS if they know about it. If your POTS is related to adrenal dysfunction, then the endocrinologist and your primary POTS doc should talk, to maybe come up with or stick with your current regimen (if working/not). I would definitly bring up your POTS to this guy, it could only help. Just be sure to check with your primary doc, before you make any changes.... Good luck. Quote Link to comment Share on other sites More sharing options...
ladyt Posted March 23, 2010 Author Report Share Posted March 23, 2010 hi..=)thanx for the response...=) I hope the doc is of the open sort.. I dont have a primary pots doc.. What I have is a sort of nice, but cluless gp.. The difrent meds i have tryed is trhou a nice cardio doc, but he is a pacemaker spesialist.. Pots doesnt exist as a diagnose here... If it hadnt been for this site i would have walking in the dark (by the way didnt gett my pots diagnose her)... But it still so frustraiting.. having all this stuff and no real help from the medical world... Quote Link to comment Share on other sites More sharing options...
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