Pots At Vanderbilt Univ.

[ddschool]

Just curious if anyone sees anyone at Vanderbilt for POTS, or is any of the reserach studies? I feel like I am not getting any answers or help around the Charlotte, NC area ....

[wareagle]

I don't but I know there have been discussions about Vandy in the past. Lot's of folks have gone for diagnosis and research. Maybe try doing a search if you're up for it....there should be a lot of posts for you to read!

[erickamcc0523]

I haven't had any experience with Vanderbilt as far as POTS goes.... I was going to if I couldn't find any local help, but I have been blessed with finding the right cardiologist in Knoxville, TN, who diagnosed me with, and is treating me for POTS. I also know of a neurologist who is familiar with POTS here in Knoxville, too. If you are interested in information (I know it's a shorter drive to Knoxville), PM me, and I'll get it for you.

[firewatcher]

I was diagnosed at Vandy. While they are wonderful for diagnosis they are not there for follow-up. They won't typically prescribe or treat you, only make recommendations to your referring doctor. I was not part of a study.

[iheartcats]

I was diagnosed at Vandy. While they are wonderful for diagnosis they are not there for follow-up. They won't typically prescribe or treat you, only make recommendations to your referring doctor. I was not part of a study.

Thanks for posting this. I was wondering about Vandy. But I have my diagnosis. And saw another specialist here and it's about the same thing. I guess..I guess I was expecting more. Maybe a miracle. Sigh.

[Sunfish]

as others have mentioned there have been a LOT of discussions about vandy over the years - inpatient/ research, outpatient, etc. - so a search will give you more than you'll know what to do with. i went as an inpatient research patient a number of years back and wrote a pretty lengthy "report" of sorts upon my return; it's here on the board under "vanderbilt chronicles". of course some of the details in my ramblings are dated but from what i've heard a lot of the "big picture" info is still very much the same.

all in all people have had mixed experiences over the years (@ vandy).....good, bad, & everything in between:-).

of course there's no miracle fix/ cure to be had anywhere so if that's the expectation every place, every doctor, etc. will be a certain disappointment.

hope this helps,

melissa

[StacyRN]

Melissa,

I read your Vanderbilt Chronicles thoroughly! I'm scheduled for a POTS study in April at Vanderbilt. I already have a diagnosis of Hyperadrenergic POTS, but I want to be in the study whether or not I get much out of it this time, because I think it is important in the big picture to further the research into POTS for the future, NOT just for myself. If I get some help out of the trip, I will be THRILLED! But I will be just as happy to have been a part of furthering the research into this medically misunderstood condition!

I just think it's important to realize that even if participating in a study doesn't help us individually, it can help us as a whole... and I've read most of the papers written by Dr. Raj, and I have Dr. Robertson's book "Primer on the Autonomic Nervous System", which has some good chapters on dysautonomias!

They ARE learning more, thanks to people like you!

Thanks, Melissa!

Stacy