erikainorlando Posted January 16, 2010 Report Share Posted January 16, 2010 Hi all,I am so hurting the last couple of days...so tired of feeling horrible. I have been researching any connection between the Guillain Barre I had in 2001 and this onset of POTS in 2008. It looks like there is a nicotnic acetylchonline receptor antibody that may be present in some POTS cases and also in Guillain Barre. Has anyone been tested for this antibody? It looks like there may be treatment options like IVIG (had it with Guillain Barre...didn't really help tho). Does anyone have any more information on this antibody. No one, including my neurologist that has seen me since Guillain Barre has even hinted at this possible antibody being evident and perhaps the cause of my POTS. Furthermore, would the antibody still be evident in my blood work even tho I have had POTs for 1 1/2 years now? For those of you who are not familiar with Guillain Barre, it is an autoimmune neurological disorder in which the peripherial nervous system is attacked rendering the patient paralyzed. Its onset for me followed a virus...much like preceding POTS. I am not saying that Guillain Barre caused POTS...I am saying my body seem to attack the nervous system in some sort of abnormal manner in an autoimmune response. I just see links that are ont being followed here by either of my main doctors. I see an EP for my POTS diagnosis...and my neurologist seems to think POTS is a cardiac disorder. I know there are many out there with lots of knowledge...any help would be great.Thanks!! Erika Quote Link to comment Share on other sites More sharing options...
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