Troy Posted January 15, 2010 Report Share Posted January 15, 2010 My body is such a mess I dont even know where to start with this but I really need help from you guys....we all have our quirks and odd symptoms but for the most part our minds are put to rest by the diagnosis we received and knowing that others have the same symptoms and discovering our limits and knowing what to expect from the illness and that our symptoms are just a result of the condition, however I do not have that comfort because I'm still in uncharted territory and my body is still doing weird unexplained things outside of the illness I was diagnoised with, I dont understand why I am so different from everyone else...We all have fluctuations in our vitals due to certain factors but mine are quite extreme. For the past 9 years I have battled with fevers above 38 c that often occur randomly even in the middle of winter, and usually the colder it gets the more my fevers increase, which is unheard of. Unlike others with POTS my fevers are not caused by external tempearture, its my body that constantly generates excessive heat which is only worsened by warmer environments so I have to keep my room at a constant 20 Celcius both winter and summer for me to be able to cope.Furthermore I am allergic to ALL sedatives, anelgesics, stimulants, opiates and even alcohol, if I take even a small amount of these substances I end up with hyperthermia and seriosuly messed up vitals. Again unheard of, I know most of you guys have some chemical sensitivity but who else has a reaction TO ALL THE SUBSTANCES I MENTIONED ? How can I have such a broad spectrum sensitivity to everything that acts on my Autonomic system ? Furthermore the advers reactions I have also cause very bizare symtoms unlike anything I've ever heard of..Sexual activity and arousal also mess up my vitals, I often end up with hyperthermia and muscle sapsms from just being aroused, THIS MAKES NO SENSE! If I preceed past the point of arousal then I end up in a state requiring emergency treatment due to dangerously and severely fluctuating vitals. I often feel like all thses odd symptoms I have bring me very close to death. How far can your blood pressure and heart rate and temperature increase or decrease before you cross that fine line resulting in fatality ? I just wish I had a normal version of the POTS and Autonomic Neuropathy I was diagnosed with like everyone else but I dont, I have a bunch of weird symptoms that no one can explain and everyday I feel like I'm cheating death....Today for example I took my usual dose of 5mg oxycodone for chronic pain, I measured my blood pressure before the medication it was at my usual 125/70 and a heart rate of 68 bmp and tempearture 37.4c everything was normal, then 45 minutes later the adverse reaction started I measured my blood pressure again now it was 178/93 with a heart rate of 46 bpm and temperature of 38.4c ...THIS MAKES NO SENSE !! How can my heart rate drop so low whilst my blood pressure increases so much and my temperature increases by over 1 degree ? So I went and lay down trying trying to relax and doing breathing excercises but whilst that droped my blood pressure down to 155/80 it had a worser effect on my heart bringing it even lower to 36 bpm, I honestly thought I was going to die and I felt like it too. I was about to take an extra dose of betablocker but I realised that could bring my heart even lower so I just went under a cold shower and just sat there for 30 minutes until my sympotoms settled back to normal and my temperature came down.1 hour later I felt sexually aroused which seems to occur inappropriately in my case due to messed up brain chemistry from a drug overdose I had 9 years ago (long story) well anyways the arousal sent me into severe muscle spasms as it usualy does and fevers again I tried to ignore it yet it got too intense so I tried to take care of the sexual urge but imideately upon attempting I found myself feeling like I was going to die again so I went checked my blood pressure and this time it was up to 193/102 and my temperature was now 38.9c , I got really freaked out and lay there contemplating wether I should call an ambulance but then 10 minutes later it settled again however the arousal feeling did not, so eventually I was able to take care of the sexual business but with great risk as everytime I felt aroused it directly effected my Blood pressure and temperature, the odd thing is though its not the exertion but the actual arousal messing up my vitals WHICH MAKES NO SENSE cause if you search online you will see all the people experiencing complications from sex is due to the exertion that further messes up their pre-exsiting condition unlike the arousal thats making me ill. Then right after the orgasm I found myself very dizzy with irregular heart and severe palpitions and checked my BP again and this time I found that it had droped from around 190 drastically to 102/55 and now I was battling hypotension with heart rartes around 159 bpm which is exactly the opposite of what I had hours earlier where I had dangerous hypertension with low heart rates.Im starting to lose sleep over all my unexplained symptoms as it causes me so much anger, hatred at my body and great frustration. Every specialist ive seen acknowledges that my case is unusal but non of them actually take the time to work it out. Someone please help me. Quote Link to comment Share on other sites More sharing options...
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