Elfie Posted January 12, 2010 Report Share Posted January 12, 2010 Hey everyone,I am sure this is on the forum somewhere, but I can't find it. I am heading back down to college soon and need to schedule an appointment with Disability services. Last semester was the first semester I was eligible for services as I had just been diagnosed with POTs after struggling with the symptoms for almost three years. I went into the meeting with the Disability services director (who handles all incoming students at my school) pretty clueless. Of course, he had never heard of POTs or dysautonomia before. He expected me to pretty much lay out what accommodations I wanted. However, I had no idea what he considered appropriate or what services were available. I was particularly concerned about the fact that I might have to miss the occasional lecture and several of my professors have attendance policies. He told me that that was not a reasonable accommodation. Everything I brought up he considered unreasonable. He provided me no guidance as to what would be appropriate or what he could do to help me even though I educated him about what my problems with POTs regarding school are. He just made me guess at what he would be able to do and then shut me down on everything I asked for. He got very angry with me like I was wasting his time. I felt as if my school has a horrible disability policy or the director was out to get me because dysautonomia isn't a "real" disability. In the end he wrote me a note for me to give to my professors asking to be lenient with absences, but not with makeup work. The note was extremely degrading. At that point I'd be d**ned if I was going to give that note to my professors. I was almost in tears after that appointment. However, this semester I have a hard course load and I am determined to make it the best semester for me. That means I need to take another trip to disability services. So, I was wondering what kind of accommodations you all would or have requested? I have most of the typical dysautonomia symptoms. I have the typical brain fog and concentration issues which really affect my schoolwork. My college campus is big and I have to walk between classes (most of the buildings are not accessible by car). This is my senior year and I need to get the classes that I need to get and sometimes that means having to quickly hoof it between classes without time to get blood back in my brain. I also sometimes have to carry a heavy bag with books. Sometimes I get dizzy from sitting in class for such a long time with my feet down and not being able to walk around. Having to present orally is the worst (which is new) because I now tend to stutter (not a nervous stutter, like a pathological one) when I am stressed or have to speak when standing up. I have problems with regulating my temperature in hot or freezing classrooms. Especially if I have to go from 103 degrees to 63 or 35 to 78. I also get sick really easy. I was having problems last semester not getting information about papers and projects soon enough for my liking. I ended up with everything piled on top of one another and it made it really hard for me to complete things. Quote Link to comment Share on other sites More sharing options...
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