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Losing Muscle Mass


Elfie
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Hey,

I was wondering if anyone else has had a dramatic loss of muscle mass since getting POTS? I have and I would love to chock it up to less activity/exercise-- but for me that actually isn't true. I have always had a lot of natural muscle mass that took me very little effort to maintain. Now I have lost a lot of strength and visible muscle while maintaining my activity level. Any ideas why?

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How are you strength-wise if you limit your activity? I took two weeks off from Pilates and that first session was great! Full strength and stamina...however the recovery was awful! Previously, I tried to push and go twice a week, but that second session was so difficult and painful and the recovery was so severe, my neurologist had me tested for myasthenia gravis. I think there is some "hormonal" screw-up that occurs and actually does reduce physical ability and muscle mass. Another POTS mystery...

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Hmm . . . I have never tried to limit my activity because most of the strength requiring activities are part of my job or life. They are things I do everyday. I haven't lost any weight. I am within three pounds of the weight I was 3.5 years ago before pots. During that 3.5 year time period I wasn't really working out but I walk alot and lift alot and I am just naturally muscular. I was always stronger than all the guys my height and weight until I was a junior or senior in high school (then testosterone won out). I was never an athlete though. Now I am living the same basic lifestyle -- even down to diet-- and am losing muscle mass like crazy.

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