Elfie Posted December 27, 2009 Report Share Posted December 27, 2009 I am trying to make a decision about where I am going to live for the next six months. I was just wondering what you all have done in your home to make it safer/better for you and also what you consider to be unsafe. I am interested both in the home itself and how you deal with other people you live with. What adjustments have your family members, significant others, or roommates had to make? How have you all adjusted your living situation to better suit you with dysautonomia? Quote Link to comment Share on other sites More sharing options...
Brye Posted December 27, 2009 Report Share Posted December 27, 2009 We have 2 sets of stairs I could do without. It forces me to exercise but I'm afraid of falling down on them. I'm thankful for my carpet since I'm a fainter. Must have a built in shower chair or accomodate a shower chair. I'm so thankful for my attached garage as well. That way if I do pass out at least I'm inside!Good luck!!Brye Quote Link to comment Share on other sites More sharing options...
erikainorlando Posted December 27, 2009 Report Share Posted December 27, 2009 I am with you Brye...the stairs are a killer! I am constantly asking my kids to get this or that upstairs or downstairs...at my worst I couldn't even make it up the stairs!Erika Quote Link to comment Share on other sites More sharing options...
pat57 Posted December 27, 2009 Report Share Posted December 27, 2009 I could not keep with with my home. Small but 2 floors, a basement, a garage and a yard. The washer and dryer were in the basement. It was a $%^&load of work -but it sold and -now everything is on one floor. WOOHOO!I forgot to say- no yard- no garage either! Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted December 28, 2009 Report Share Posted December 28, 2009 I wish my home was all on one floor. I have 4 floors counting basement and attic which I use. Now that I have help I can take a shower when my help is here and not worry on second floor. I have wonderful neighbors who take care of my lawn and snow for free. I now sleep in a porch and have a comode for the night as I was fainting in the night going to the bathroom (I have a beautiful throw so it looks like a nice chair in the day time). I bring food to the bedroom and drinks to keep my self safe.I wish I could move to everything on one floor, but I'm in a catch 22 so to speak. Long story SSDI. I would never be able to re-buy and have a mortgage. Quote Link to comment Share on other sites More sharing options...
flop Posted December 28, 2009 Report Share Posted December 28, 2009 I wish I didn't have to go upstairs to use the bathroom - if I had the money I would add a downstairs shower-room to my house (dream of having a spacious wetroom with an open shower).My previous flat had hard floors so I bought a load of foam square jigsaw pieces (kids floor coverings, but they also do them for gyms etc) - that way if I did faint at least my head was slightly cushioned from the floor.Stairs - have a "stair basket" at each end to put in all the things that need taking up or down stairs. Then if you have housemates / family they can take stuff up/down for you, otherwise just do one trip yourself not up and down all the time. (However don't use this for heavy items - get someone else to carry them if you can).Bedroom supplies - under my bedside table I have a 2 litre bottle of water, a bottle of blackcurrant squash, and a stash of salty snacks. I can refill my water glass during the night without getting up. Also handy for when I feel dizzy and have to go lie down, then realise that I am hungry or short of salt - no need to go down to the kitchen when I am wobbly.If you are a hot drinks person then either a good vacuum flask or a travel kettle in your bedroom are a good idea.Flop Quote Link to comment Share on other sites More sharing options...
prettyinpink Posted December 28, 2009 Report Share Posted December 28, 2009 I went to my aunt's house for the holidays and it was so exhausting to be in a house with a huge kitchen. Just getting a glass of water was much more difficult. I love my small kitchen where I can reach almost everything I need from a bar stool and the fridge is just a few feet away. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted December 28, 2009 Report Share Posted December 28, 2009 Hubby and I actually thought about moving and building the "ideal" home for me and any unfortunate progression in my condition. At the time we were a bit scared and we had a list of must haves:All one floor, with at-grade entrances with no "threshold bumps."Wide doors--wheelchair accessible widthAll hallways wheelchair widthOpen floorplan with few hallwaysA "wet" bathroom with grab-bars and a completely accessible shower.Variable counter heights in the bathrooms and kitchenPocket doors wherever possibleA separate "apartment" for a live-in caregiver (for me or the kids)It hasn't come to this yet, but we still have the floorplans. Quote Link to comment Share on other sites More sharing options...
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