Mestinon!!! So far, great!

[LisaColumbus]

Hi, friends...Just want to let you know that I have tried Mestinon.  I was put on Mestinon in the hospital because I was in such bad POTS state.  I was also dehyrated.

The Mestinon is working like a champ.  It is an inexpensive drug.  So far, perhaps the only side effect I have had is an upset stomach--I can deal with that.  I am also back on DDAVP to help retain fluids.

After 5 days in the hospital, it is oh so nice to be home. And, I missed hearing what's happening to all my friends here.

             

<{POST_SNAPBACK}>

Hi Goldiedance, I just did a search for Mestonin and pulled up your post. Is this med still working well for you? I just saw Dr Grubb today and he prescribed this for me.

[Eillyre]

Hi Goldie!

I'm so glad a fellow mestinon-taker is also finding relief! I've improved so much since Dr. Low had me start it. I get some weird looks when neurologists find out I'm taking it without having M. Gravis, but hey, it works! Hope it continues to help you function better!

Angela

[Sunfish]

I too am a new partaker of the mestinon, although it was NOT good for me on its own. It was part of the med trials I participated in at Vanderbilt & did well for me in combo with inderal (beta blocker). It wasn't part of the trial but I'm also on midodrine. (more info in my "Vanderbilt Chronicles" post...er, book) Other stuff too but those are the primary HR/BP meds for daytime use. It's not an immediate fix at all but the small doses of mestinon (30mg TID) & inderal (10mg TID) do seem to be an improvement for me & the mestinon is also helping my gastroparesis...yippee! I too have already gotten many a look about being on the mestinon without having MG, but no stranger than all the looks over the years about all the other "alternative" med uses (i.e. concerta not for ADHD, lexapro/celexa not for depression, etc.)

i also like the fact that even though the mestinon is new for autonomic uses it's not a new drug in and of itself...

:-)melissa