ramakentesh Posted November 15, 2009 Report Share Posted November 15, 2009 Might be of interest:http://journals.lww.com/infectdis/Abstract...yndrome.16.aspx Quote Link to comment Share on other sites More sharing options...
iheartcats Posted November 15, 2009 Report Share Posted November 15, 2009 Wish I could read the whole thing - how'd they find out it caused POTS?I still suspect that a virus really triggered mine. Would love to know for sure. :/ Quote Link to comment Share on other sites More sharing options...
ana_22 Posted November 15, 2009 Report Share Posted November 15, 2009 i testeted positive to mycoplasma....interesting ill have to read the full text whem im feeling a little better Quote Link to comment Share on other sites More sharing options...
sue1234 Posted November 15, 2009 Report Share Posted November 15, 2009 Is there anyway you could give us full access to the article? All I can get is the short synopsis. It sure might sound relevant in my case. Isn't mycoplasma infections related to fungus?? My issues started after Hurricane Rita(the bigger hurricance that happened one month after Katrina), and I swear the winds were so strong and driving, that we had a small amount of moisture come in UNDER our walls between the walls and the concrete. In fact some peoples homes were ever so slightly repositioned on top of their concrete! Anyway, I could have been exposed to fungus in my house. If mycoplasma is the case, then it sounds like some strong anti-fungals would be in the treatment picture. Am I wrong? Would love to read the article! Quote Link to comment Share on other sites More sharing options...
juliegee Posted November 15, 2009 Report Share Posted November 15, 2009 Like the others, I wish I could read more. I could only access the abstract. Interesting idea. My son, Mack was recently DXed with mycloplasma via clinical signs. It looked just like H1N1 to me, but his flu test was negative. (One half of the students at his school were ill. Only a handful tested positive for H1N1, despite the fact that they ALL had the same symptoms.) After a few rounds of antibiotics and steroids, etc., he got better, BUT his chest was very sore for a long time. Breathing hurt. Interestingly enough, Mack is being treated with a few months of antibiotics via an experimental treatment prescribed by Dr. Rowe. He MAY (cautiously optimistic) be a little better. He was able to attend a week long college-hunting trip with his classmates (!!!) and he bicycled 36 miles with his Dad yesterday. He still falls asleep right after school, but his energy M-I-G-H-T be improving.He was initially (for the mycoplasma) treated with 2 rounds of Z-pack. Now, he's taking 100mg of minocycline daily. I'd love to learn more about this connection. Post more as you find it everyone!Julie Quote Link to comment Share on other sites More sharing options...
sue1234 Posted November 15, 2009 Report Share Posted November 15, 2009 Wow, Julie, that sounds great for your son! I bet he was enjoying the new-found ability to do more. Yes, we are all waiting with baited breath for Rama... to post more. I think he has been sleeping during our waking hours. Quote Link to comment Share on other sites More sharing options...
ethansmom Posted November 15, 2009 Report Share Posted November 15, 2009 I have mycoplasma which I definitely think is the cause of my POTS type symptoms. Back in 2004, I also tested positive for Lyme disease, Epstein Barr Virus, and HHV6. All of these are common co-infections of Lyme that can come with a tick bite.I've been running a Lyme support group for 3 years now and have done countless hours of research. Most of the patients I see with autonomic dysfunction also have a positive test for mycoplasma- they used to call if Gulf War Syndrome because so many soldiers came home from the war with what we call POTS. I've even heard some theorize that it was a man-made bacteria with a military patent, but truth be told I don't get into all that conspiracy stuff.I think there is definitely a link, and if you have POTS you should definitely look into it! Antibiotic treatment can be effective once you find the right meds and the right dosage. Quote Link to comment Share on other sites More sharing options...
juliegee Posted November 15, 2009 Report Share Posted November 15, 2009 I have mycoplasma which I definitely think is the cause of my POTS type symptoms. Back in 2004, I also tested positive for Lyme disease, Epstein Barr Virus, and HHV6. All of these are common co-infections of Lyme that can come with a tick bite.I've been running a Lyme support group for 3 years now and have done countless hours of research. Most of the patients I see with autonomic dysfunction also have a positive test for mycoplasma- they used to call if Gulf War Syndrome because so many soldiers came home from the war with what we call POTS. I've even heard some theorize that it was a man-made bacteria with a military patent, but truth be told I don't get into all that conspiracy stuff.I think there is definitely a link, and if you have POTS you should definitely look into it! Antibiotic treatment can be effective once you find the right meds and the right dosage.What is the RIGHT med & DOSAGE? Share! Mack is on anti'B's for Lyme now even though it is unlikely that Lyme is the cause of his issues. (He had severe GI symptoms even as an infant.) His Dr. (Peter Rowe @ Hopkins) has seen enough of his patients improve on the "Lyme regimen" that he prescribes it empirically to see what happens. He surmises that the anti-B's help with inflammation OR treat an infection similar to Lyme that we don'y currently know about and can't test for. Thanks for your help!Julie Quote Link to comment Share on other sites More sharing options...
Jamie S Posted July 21, 2020 Report Share Posted July 21, 2020 My daughter was diagnosed with Mycoplasma Pneumonia in Oct 2019 and had Lyme type symptoms for many months. She was tested for Mono, strep, and the Flu, all negative. She now has Aquired Autonomic Dysfunction- Dysautonomia and POTS. She has most of her symptoms at a level where she can function at about 85%. Any secrets or tips to help her out ? Quote Link to comment Share on other sites More sharing options...
Pistol Posted July 21, 2020 Report Share Posted July 21, 2020 @Jamie S - so sorry you guys have to go through this!!! I am not sure how old your daughter is but I have a neighbor whose daughter had Lymes disease in senior high and developed POTS after it. She was limited for a year but and was not able to go to college as planned, but after taking a year off, taking it easy, starting a beta blocker and following the usual treatment of salt/water/compression she improved to where she was able to become a CNA. She now is completely symptom free, except for palpitations. The most important thing she can do for herself is the above mentioned regimen, avoiding stress and prolonged periods of standing and exercising regularly to her ability. This is VERY important, especially since she is minimally affected. 30 minutes aerobic exercise 3 times a week is recommended. Also - if she gets symptoms ( such as dizziness, palpitations, racing heart etc ) - regardless of where she is or what she is doing: she must sit down and rest to avoid a flare. In younger people post-viral dysautonomia can be overcome, however often it reappears with usual triggers such as illness, pregnancy, trauma or very stressful experiences. I am so glad you state that she can function at 85% - and I hope this will improve as well. Best wishes!!!! 😉 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.