busymom Posted October 30, 2009 Report Share Posted October 30, 2009 Does anyone see a dysautonomia specialist at the cleveland clinic in ohio that they would recommend? My cardiologist is sending me there from jersey. This is a big ordeal because I am married with five kids. It's going to be alot on the whole family and I just want to make sure I'm going to someone who is experienced in this field. I'm at the point where I want answers even if they are answers I don't want to hear... and I want them fom someone who knows what they are talking about. All I'm looking for is to be able to perform my own adl's... tired of my kids having to help take of mom. Thanks for any suggestions!God Blessbusymom Quote Link to comment Share on other sites More sharing options...
Brye Posted October 30, 2009 Report Share Posted October 30, 2009 Busy Mom:No recommendations on specialist but I have 4 kids to keep up with and can kind of relate. I like my EP doctor but really need an autonomic specialist at some point. There are none any where near here and my trips need to occur in my spare time ... oh wait ... there is none!! I'm sure you're in the same situation. Hope you find someone who can do a full eval. Keep us posted on your success in getting help because at some point I will also be needing to travel to get some answers to all my symptoms and not just my heart rhythm problems!Best of luck!!Brye Quote Link to comment Share on other sites More sharing options...
familypast Posted October 30, 2009 Report Share Posted October 30, 2009 Does anyone see a dysautonomia specialist at the cleveland clinic in ohio that they would recommend? My cardiologist is sending me there from jersey. This is a big ordeal because I am married with five kids. It's going to be alot on the whole family and I just want to make sure I'm going to someone who is experienced in this field. I'm at the point where I want answers even if they are answers I don't want to hear... and I want them fom someone who knows what they are talking about. All I'm looking for is to be able to perform my own adl's... tired of my kids having to help take of mom. Thanks for any suggestions!God BlessbusymomI am still in the diagnostic phase and seeing Dr. Fetnat Foaud at Cleveland Clinic. I had a tilt table test with her in September and additional autonomic tests earlier this week. She is well known researcher in this area and has pioneered some of the techniques used in the diagnosis. She's also very thorough. On a personal note, there's something very warm and caring about her (but in a low key way). From what I've read here on the forum, she is more focused on diagnosis than follow up care. That's more than ok by me! Getting the right diagnosis is half (three fourths) of the battle. Quote Link to comment Share on other sites More sharing options...
Angelika_23 Posted October 30, 2009 Report Share Posted October 30, 2009 I see Dr. Robert Shields at Cleveland Clinic. He's a nice guy too. Angela Quote Link to comment Share on other sites More sharing options...
dino551 Posted October 30, 2009 Report Share Posted October 30, 2009 Busy MOM-I've Seen Dr. Fouad, she is o.k. I see Dr. Thomas Chelimsky at University Hospitals of Cleveland. He is a neurologist and is very good. I have three kids myself and I know how you feel. Christine Quote Link to comment Share on other sites More sharing options...
Sunfish Posted November 4, 2009 Report Share Posted November 4, 2009 dr. shields is my fave in cleveland, though in some ways in may depend on what you are looking for in a doctor/ eval. i have written longer/ more detailed replies re: cleveland docs, options, etc. previously so you may want to do a search for those. i don't have personal experience w/ dr. faoud but have worked quite extensively w/ both dr. chelimsky at university hospitals and dr. shields at cleveland clinic (as well as a number of other specialists in cleveland.) if i have a chance i'll try to find my earlier ramblings & post a link myself. hope this helps, melissa Quote Link to comment Share on other sites More sharing options...
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