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Resting Heart Rate


prettyinpink
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My hr had been running anywhere from 110-150 while sitting up and 85-115 laying still. Now when I start turning it tends to shoot up even higher. Beta blockers didn't work for me either...one landed me in trendelenburg(head down, feet up) in the cardiac unit with bag after bag of fluid running into to me as my blood pressure diminished to almost nothing.As far as typical, I don't know, but that's been the case with me.

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I know we are all here for dysautonomia, but I like to remind people to rule out other causes of symptoms, to make sure they aren't contributing to making the dys. worse. For a resting high heart rate, I'm sure he has, but has your doctor thoroughly checked you thyroid out? I had Hashimoto's thyroid disease on top of my POTS, but the symptoms seemed to blend together. I had my thyroid removed almost 2 years ago, and still can't get my TSH where it needs to be because my dys. symptoms(palpitations, heat) get worse as my TSH gets in the normal range. I have to stay as high as I can in the normal range to keep my heart rate at normal. Of course, when I am up and moving, it still shoots up to around 100, but it's worse with more thyroid meds.

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Unmedicated, my supine heart rate is from 120-140. Originally it was thought that I was hypovolemic, but after testing it turned out that I just had poor vascular tone. My blood has a hard time getting where it's going regardless of my position it seems. Beta blockers lower my blood pressure, but if i don't have them I go right over 200 after a few minutes of basic activity. I wish there were some other way.

As far as I know, it's more typical to have a normal or high normal resting heart rate; the doctors I'\e seen who are familiar with POTS have stressed this to me.

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When I'm supine, my HR is 60. It used to go into the 30s and 40s but I got a pacemaker two years ago for the bradycardia. Sitting, it goes a little higher, but not much. If I stand or move around, it shoots up to 110-140, while my BP drops from about 95/65 to around 70/58. I am not on any medication - my BP is too low to take BB or many other drugs.

Cheers,

Jana

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Without meds resting - 150's

walking - 170's +

With meds resting 35-75 usually about 65

walking about 115-125

on meds wearing my Heart rate monitor I have had a low of 28 and a high of 200 (not sure what I was doing may have been walking upstairs.

I was told to only be concerned if my heart rate went up and stayed up (or stayed too low) I know it is going to swing too much.

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Wow it seems like such a range. I don't have a thyroid anymore but maybe I should get my levels tested to see if I'm taking too much synthroid. Has anyone taken a calcium channel blocker for high heart rate? If you have low blood pressure with POTS then will lowering your heart rate make your bloodpressure worse since your hr can help compensate for low bp?

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Is it typical to have a higher resting heart rate?

I think it is pretty typical. Mine's almost never below 90, and it can get up to 140-160. I've never been able to follow the guidelines for what my heart rate should be during exercise. According to those, I'm terribly out of shape, and I'm not.

Amy

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I'm like potsgirl (Jana), but without pacer... bradycardic baseline and double/triple pulse upon standing (which means 40-50's supine up to 110-120bpm or so standing). I usually skip sitting phase but I should probably measure that too... for me, sitting ends up being closer to supine. Others seem to have sitting conditions leaning more toward their upright state. I don't know if it is most typical to have higher general rates... might be... either way, it is certainly not "untypical" or "exclusive" of our dysautonomia diagnosis.

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Sitting, 50-60 bpm

Standing, 60-70

Supine, as low as 25-50

Bradycardia is more my thing. It used to puzzle me when doctors when comment on how 'fit' I was (when I wasn't exactly a poster child for daily workouts other than walking).

My Mom also has this condition. Tachycardia didn't set in until my ANS/POTS symptoms emerged and dramatically worsened in a relatively short period of time, mid-30s.

Even with a prolonged period of careful symptom management, if I am under a lot of stress, or haven't been keeping up on fluids, or diet slips cause insulin/epinephrine to surge, my supine heartbeat rate can be as high as 100 for several days, when checked first thing in the morning, upon waking.

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Right now my HR rate sitting is 47 and a few minutes ago when I stood and walked a few feet to the bathroom it went to 117. That is on midodrine. Resting HR usually hovers around 45-60 no symptoms except a strange feeling in my chest. It always goes up at least 30 beats upon standing and often doubles or triples with the main symptom being shortness of breath. Low blood pressure causes me the most problems but the midodrine really helps with that. My heart rate seems to stay the same whether or not my bp is high or low.

Debbie

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I take Midodrine 3x daily and Bisoprolol 1 time daily - so mine are all medicated stats; except for a week I forgot to get my Midodrine script refilled HR stayed between 40 - 50 even with my PM/ICD.

Sitting HR - stays at 60 with my pm

Supine HR - 80 (when I feel bad or my bp is low I'll lay down to make it go higher)

Walking or activity HR - can be 175+ my icd is set for 175 VT & 220 - 225 VF

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  • 1 month later...

So I was sitting in class today and started getting extremly hot. My heart was pounding really fast in my chest. My heart rate was 175 bpm and i was sitting still with my legs propped up on a chair. I laid down for a few hours and my hr came down to 160. My cardio wanted me to get an ekg done to be safe. Dr. Grubb met me in the er after my ekg which was normal except for the tachycardia. He said I have inappropriate sinus tachycardia in addition to my pots which i why my resting hr is so high. Just thought I'd let you all know there was a reason for my high resting rate. I'm trying another bb so hopefully that helps.

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This is an interesting thread! Glad you found a reason for it prettyinpink!

I'm not DX but wanted to respond anyway... this is based on the readings I've been taking with my watch to show my GP...

Supine: 70-80

Sitting: 85-97

Standing: 95-125 (but usually tends to hover more around 107 after the initial 'peak').

I was interested to notice though the other day, whilst sitting at college taking notes I started to feel 'funny' (dizzy, breathless, uncomfortable) so I looked at my watch and my hr had gone up to 125 just sitting- which seemed high for me personally. Since I've been monitering myself with the device I'd never seen a number that high just sitting so it was quite a surprise! :blink:

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How much does your HR change going from supine to standing?

Is that to me or prettyinpink? I'll answer anyway :blink: I took it the past few mornings, Wed it was 80-122, Thursday 74-117, today 77-122. It spikes up to the high number then tends to fall down between 105-114, though a few times I have seen it fall into the 90s, where it hovers around between 95 and 105.

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typically my hr is 100-120 resting and 140-180 standing. Dr.grubb said that the IST is what keeps my hr still so high at rest and the pots is why it rises >30bpm with standing as well as causing the other pots symptoms i have.

lauralulu- do you have a cardio to take all these results to? do you have other symptoms?

Hi- no I don't have any sort of specialist at the moment. I've been 'ill' for approx 8 years, with some times being better than others. The most apparent symptoms I've had are constant thirst, overactive bladder (which don't really go well together, haha!) and fatigue. Period problems (irregular, heavy and painful) and more recently feelings of weakness, shakyness and breathlessness.

I have many other things too that I've had for years, such as neck aches, back aches, headaches, migraine 'auras' and forgetfulness.

I'm only just starting to realise how all of these seemingly unrelated symptoms could in fact be linked together...

I'm hoping my GP will be sympathetic and refer me on to someone who could give me the right sort of tests.

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