prettyinpink Posted October 29, 2009 Report Share Posted October 29, 2009 I was curious what everyones heart rate was like when they are lying down or sitting. My sitting hr is around 125-130, beta blockers didn't help because they made me so tired and caused my blood pressures to drop every more. Is it typical to have a higher resting heart rate? Quote Link to comment Share on other sites More sharing options...
busymom Posted October 29, 2009 Report Share Posted October 29, 2009 My hr had been running anywhere from 110-150 while sitting up and 85-115 laying still. Now when I start turning it tends to shoot up even higher. Beta blockers didn't work for me either...one landed me in trendelenburg(head down, feet up) in the cardiac unit with bag after bag of fluid running into to me as my blood pressure diminished to almost nothing.As far as typical, I don't know, but that's been the case with me. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted October 29, 2009 Report Share Posted October 29, 2009 I know we are all here for dysautonomia, but I like to remind people to rule out other causes of symptoms, to make sure they aren't contributing to making the dys. worse. For a resting high heart rate, I'm sure he has, but has your doctor thoroughly checked you thyroid out? I had Hashimoto's thyroid disease on top of my POTS, but the symptoms seemed to blend together. I had my thyroid removed almost 2 years ago, and still can't get my TSH where it needs to be because my dys. symptoms(palpitations, heat) get worse as my TSH gets in the normal range. I have to stay as high as I can in the normal range to keep my heart rate at normal. Of course, when I am up and moving, it still shoots up to around 100, but it's worse with more thyroid meds. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted October 30, 2009 Report Share Posted October 30, 2009 Unmedicated:Sitting= 70-99 BPMSupine= 40-60 BPMMedicated:Sitting=50-70 BPMSupine=who knows?-55 BPMUpright and moving all bets are off, even the beta blocker can't stop the tachycardia if I exercise/walk (140-200+) Quote Link to comment Share on other sites More sharing options...
sugartwin Posted October 30, 2009 Report Share Posted October 30, 2009 Unmedicated, my supine heart rate is from 120-140. Originally it was thought that I was hypovolemic, but after testing it turned out that I just had poor vascular tone. My blood has a hard time getting where it's going regardless of my position it seems. Beta blockers lower my blood pressure, but if i don't have them I go right over 200 after a few minutes of basic activity. I wish there were some other way.As far as I know, it's more typical to have a normal or high normal resting heart rate; the doctors I'\e seen who are familiar with POTS have stressed this to me. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted October 30, 2009 Report Share Posted October 30, 2009 When I'm supine, my HR is 60. It used to go into the 30s and 40s but I got a pacemaker two years ago for the bradycardia. Sitting, it goes a little higher, but not much. If I stand or move around, it shoots up to 110-140, while my BP drops from about 95/65 to around 70/58. I am not on any medication - my BP is too low to take BB or many other drugs. Cheers,Jana Quote Link to comment Share on other sites More sharing options...
kayjay Posted October 30, 2009 Report Share Posted October 30, 2009 Without meds resting - 150's walking - 170's +With meds resting 35-75 usually about 65 walking about 115-125on meds wearing my Heart rate monitor I have had a low of 28 and a high of 200 (not sure what I was doing may have been walking upstairs.I was told to only be concerned if my heart rate went up and stayed up (or stayed too low) I know it is going to swing too much. Quote Link to comment Share on other sites More sharing options...
mountain girl Posted October 30, 2009 Report Share Posted October 30, 2009 My hr supine before meds at the tilt table test was 64, but shot up to 120-130 standing, with activity it was 170 and up. Now on meds, it ranges from 59 to 80. The meds keep it down most of the time except with stair climbing or too much activity. My bp varies alot 90/50 to 128/80. Quote Link to comment Share on other sites More sharing options...
prettyinpink Posted October 30, 2009 Author Report Share Posted October 30, 2009 Wow it seems like such a range. I don't have a thyroid anymore but maybe I should get my levels tested to see if I'm taking too much synthroid. Has anyone taken a calcium channel blocker for high heart rate? If you have low blood pressure with POTS then will lowering your heart rate make your bloodpressure worse since your hr can help compensate for low bp? Quote Link to comment Share on other sites More sharing options...
Mrs. Burschman Posted October 31, 2009 Report Share Posted October 31, 2009 Is it typical to have a higher resting heart rate?I think it is pretty typical. Mine's almost never below 90, and it can get up to 140-160. I've never been able to follow the guidelines for what my heart rate should be during exercise. According to those, I'm terribly out of shape, and I'm not.Amy Quote Link to comment Share on other sites More sharing options...
erik Posted November 5, 2009 Report Share Posted November 5, 2009 I'm like potsgirl (Jana), but without pacer... bradycardic baseline and double/triple pulse upon standing (which means 40-50's supine up to 110-120bpm or so standing). I usually skip sitting phase but I should probably measure that too... for me, sitting ends up being closer to supine. Others seem to have sitting conditions leaning more toward their upright state. I don't know if it is most typical to have higher general rates... might be... either way, it is certainly not "untypical" or "exclusive" of our dysautonomia diagnosis. Quote Link to comment Share on other sites More sharing options...
Intuit Posted November 5, 2009 Report Share Posted November 5, 2009 Sitting, 50-60 bpmStanding, 60-70Supine, as low as 25-50Bradycardia is more my thing. It used to puzzle me when doctors when comment on how 'fit' I was (when I wasn't exactly a poster child for daily workouts other than walking).My Mom also has this condition. Tachycardia didn't set in until my ANS/POTS symptoms emerged and dramatically worsened in a relatively short period of time, mid-30s.Even with a prolonged period of careful symptom management, if I am under a lot of stress, or haven't been keeping up on fluids, or diet slips cause insulin/epinephrine to surge, my supine heartbeat rate can be as high as 100 for several days, when checked first thing in the morning, upon waking. Quote Link to comment Share on other sites More sharing options...
ana_22 Posted November 5, 2009 Report Share Posted November 5, 2009 supine: 78-90sitting-85-110standing-95-140 Quote Link to comment Share on other sites More sharing options...
StacyRN Posted November 5, 2009 Report Share Posted November 5, 2009 My heart rate is in the 70's when I'm lying down, 90's when I'm sitting, and 115-160's when I'm standing up, higher with housework. I notice that when my systolic BP is higher, my HR is lower; and when my BP is lower, my HR goes up alot. Quote Link to comment Share on other sites More sharing options...
Rafiki Posted November 8, 2009 Report Share Posted November 8, 2009 Right now my HR rate sitting is 47 and a few minutes ago when I stood and walked a few feet to the bathroom it went to 117. That is on midodrine. Resting HR usually hovers around 45-60 no symptoms except a strange feeling in my chest. It always goes up at least 30 beats upon standing and often doubles or triples with the main symptom being shortness of breath. Low blood pressure causes me the most problems but the midodrine really helps with that. My heart rate seems to stay the same whether or not my bp is high or low. Debbie Quote Link to comment Share on other sites More sharing options...
avidita Posted November 8, 2009 Report Share Posted November 8, 2009 Anywhere from 54-65 when lying down. 70-89 when sitting down. Btw when I feel the worst when my heart rate is low (regardless of whether or not I've had prior HR spikes)...Neuro won't consider BB for me with my already low resting HR. Quote Link to comment Share on other sites More sharing options...
lissy Posted November 9, 2009 Report Share Posted November 9, 2009 my sitting is 70-85 sleeping goes in 50'sstanding 130Before DX I did have alittle too much alcohol and my heart was 150 sitting the medic said thats not normal we should take u in....Lissy Quote Link to comment Share on other sites More sharing options...
lmt033167 Posted November 9, 2009 Report Share Posted November 9, 2009 I take Midodrine 3x daily and Bisoprolol 1 time daily - so mine are all medicated stats; except for a week I forgot to get my Midodrine script refilled HR stayed between 40 - 50 even with my PM/ICD.Sitting HR - stays at 60 with my pmSupine HR - 80 (when I feel bad or my bp is low I'll lay down to make it go higher)Walking or activity HR - can be 175+ my icd is set for 175 VT & 220 - 225 VF Quote Link to comment Share on other sites More sharing options...
prettyinpink Posted December 11, 2009 Author Report Share Posted December 11, 2009 So I was sitting in class today and started getting extremly hot. My heart was pounding really fast in my chest. My heart rate was 175 bpm and i was sitting still with my legs propped up on a chair. I laid down for a few hours and my hr came down to 160. My cardio wanted me to get an ekg done to be safe. Dr. Grubb met me in the er after my ekg which was normal except for the tachycardia. He said I have inappropriate sinus tachycardia in addition to my pots which i why my resting hr is so high. Just thought I'd let you all know there was a reason for my high resting rate. I'm trying another bb so hopefully that helps. Quote Link to comment Share on other sites More sharing options...
lauralulu Posted December 11, 2009 Report Share Posted December 11, 2009 This is an interesting thread! Glad you found a reason for it prettyinpink!I'm not DX but wanted to respond anyway... this is based on the readings I've been taking with my watch to show my GP... Supine: 70-80Sitting: 85-97Standing: 95-125 (but usually tends to hover more around 107 after the initial 'peak'). I was interested to notice though the other day, whilst sitting at college taking notes I started to feel 'funny' (dizzy, breathless, uncomfortable) so I looked at my watch and my hr had gone up to 125 just sitting- which seemed high for me personally. Since I've been monitering myself with the device I'd never seen a number that high just sitting so it was quite a surprise! Quote Link to comment Share on other sites More sharing options...
potsgirl Posted December 11, 2009 Report Share Posted December 11, 2009 How much does your HR change going from supine to standing? Quote Link to comment Share on other sites More sharing options...
lauralulu Posted December 11, 2009 Report Share Posted December 11, 2009 How much does your HR change going from supine to standing?Is that to me or prettyinpink? I'll answer anyway I took it the past few mornings, Wed it was 80-122, Thursday 74-117, today 77-122. It spikes up to the high number then tends to fall down between 105-114, though a few times I have seen it fall into the 90s, where it hovers around between 95 and 105. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted December 11, 2009 Report Share Posted December 11, 2009 Varies a lot. When I eat and in the AM POTS symptoms are worse--including tachycardia. In the evenings I often don't have tachycardia.sitting--70-100standing--90-120 Quote Link to comment Share on other sites More sharing options...
prettyinpink Posted December 11, 2009 Author Report Share Posted December 11, 2009 typically my hr is 100-120 resting and 140-180 standing. Dr.grubb said that the IST is what keeps my hr still so high at rest and the pots is why it rises >30bpm with standing as well as causing the other pots symptoms i have. lauralulu- do you have a cardio to take all these results to? do you have other symptoms? Quote Link to comment Share on other sites More sharing options...
lauralulu Posted December 11, 2009 Report Share Posted December 11, 2009 typically my hr is 100-120 resting and 140-180 standing. Dr.grubb said that the IST is what keeps my hr still so high at rest and the pots is why it rises >30bpm with standing as well as causing the other pots symptoms i have. lauralulu- do you have a cardio to take all these results to? do you have other symptoms?Hi- no I don't have any sort of specialist at the moment. I've been 'ill' for approx 8 years, with some times being better than others. The most apparent symptoms I've had are constant thirst, overactive bladder (which don't really go well together, haha!) and fatigue. Period problems (irregular, heavy and painful) and more recently feelings of weakness, shakyness and breathlessness. I have many other things too that I've had for years, such as neck aches, back aches, headaches, migraine 'auras' and forgetfulness. I'm only just starting to realise how all of these seemingly unrelated symptoms could in fact be linked together... I'm hoping my GP will be sympathetic and refer me on to someone who could give me the right sort of tests. Quote Link to comment Share on other sites More sharing options...
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