ramakentesh Posted October 28, 2009 Report Share Posted October 28, 2009 A reknowned cardiologist in my home town who saw my father stated that POTS tended to run in families where cardiomyopathy (dilated?) also ran. Anyone niced this in their situation. My family has a strong history of cardiomyopathy and migraine. thanks! Quote Link to comment Share on other sites More sharing options...
erik Posted October 28, 2009 Report Share Posted October 28, 2009 Yes on family migraine (though I lack). 1 parental cardiomyopathy... unsure if it is hereditary form or secondary to other condition. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted October 28, 2009 Report Share Posted October 28, 2009 no history of cardiomyopathy on either side in my case. Quote Link to comment Share on other sites More sharing options...
megan2 Posted October 29, 2009 Report Share Posted October 29, 2009 Cardiomyopathy is often associated with mitochondrial disease, which can cause POTS/dysautonomia.Migraine headaches are another family tree factor suggestive of mitochondrial disease. Quote Link to comment Share on other sites More sharing options...
familypast Posted October 29, 2009 Report Share Posted October 29, 2009 YES. I've wondered this myself! There's a lot of heart failure in my mother's line. My mother doesn't have cardiomyopathy, but has coronary heart disease and 50% renal failure (she's 67). I created a genogram using information I gathered from other family members and from death certificates. Here's my direct maternal line, starting with my grandmother: Grandmother: congestive heart failureGreat-grandfather: "muscular heart disease"2nd great grandmother: "cardiac asthma"My grandmother had 12 siblings - two died as babies and a brother died in a car accident. Of the remaining 9 siblings: one brother had "cardiac decompensation", another "pulmonary insufficiency" (i.e. pulmonary valve of heart); a sister with Atrial Fibrillation, another sister with Ventricular Fibrillation. A third sister died of cancer, but also had MVP. I'm convinced there's something to this. Sorry so morbid on my first post!Debbie Quote Link to comment Share on other sites More sharing options...
Tammy Posted October 29, 2009 Report Share Posted October 29, 2009 I don't know about Cardiomyopathy, as I've never heard the term from anyone in my family, but on my mom's side there were many of her sibbling who had heart failure. She has had severe headache most of her life, so maybe this is connection also. I really think for some of us, there is a genetic link, but where that link is can be difficult to trace at times. Quote Link to comment Share on other sites More sharing options...
Brye Posted October 30, 2009 Report Share Posted October 30, 2009 HMMMMM! Grandmother with cardiomyopathy. I had cardiomyopathy after my last pregnancy with an EF of 30%. It's resolved now thankfully. Grandmother and all 4 of her children had congenital heart defects as well. I also have a heart defect. Could be some connection?Brye Quote Link to comment Share on other sites More sharing options...
cmtaylor5 Posted October 30, 2009 Report Share Posted October 30, 2009 Yes, my maternal grandfather had cardiomyopathy. I inherited EDS from my mother. No migraines for me, but my son who has EDS and POTS has mild ones (blurry vision followed by moderate headaches).Carolyn Quote Link to comment Share on other sites More sharing options...
vemee Posted October 30, 2009 Report Share Posted October 30, 2009 None on either side of my family either. I wonder if the cardiomyopathy could be from unrecognized pots? Quote Link to comment Share on other sites More sharing options...
Mrs. Burschman Posted October 31, 2009 Report Share Posted October 31, 2009 Hearts, no, migraines, yes. Quote Link to comment Share on other sites More sharing options...
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