gomindy21 Posted October 13, 2009 Report Share Posted October 13, 2009 Hello Everyone, I had just got diagnosed with POTS syndrome about 2 weeks ago. I will not be meeting with a specialist till next week. THere are so many things I am unsure of and wished I had answers to. I was wondering if anyone else had a constant searing pain in there heart even when your heart rate is in the 70's. My heart has been hurting since last night through today. Occasionally my heart rate has been in the 80's, but when I'm sitting it's in the 70's. Any thoughts would be greatly appreciated. I do have an event monitor on, but I don't know if this is something to go into the ER for. Also my blood pressure is never steady. When I am sitting within a minute it will go from systolic around 98 to systolic 129. Also when I'm laying it sometimes goes into the 80's. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted October 13, 2009 Report Share Posted October 13, 2009 Has the pain been going on all along, or is this new? If it's new, doesn't go away, and is intense, that's something to be seen about ASAP, like in the ER. BTW, being seen by a specialist within a few weeks of diagnosis is actually REALLY FAST. I waited months... 6 months, I think? Quote Link to comment Share on other sites More sharing options...
potsgirl Posted October 13, 2009 Report Share Posted October 13, 2009 I agree - I think you should go to the ER to be seen if it's a severe pain that is new to you. Let us know how you're doing....Take care,Jana Quote Link to comment Share on other sites More sharing options...
mkoven Posted October 13, 2009 Report Share Posted October 13, 2009 agree with what others have said. chest pain can mean so many different things--some benign, some not. If it's new, it should get looked at. They can't do everything in the ER, but they can at least do an ekg (which gives more info than an event monitor, as it has more leads), and they can check your cardiac enzymes (which assess if there is damage.) Quote Link to comment Share on other sites More sharing options...
gomindy21 Posted October 14, 2009 Author Report Share Posted October 14, 2009 Thanks everyone! I no longer have the chest pain, just palpitations here and there. When I first started having severe POTS episodes, I had similar chest pain(4 or 5 weeks ago). I think the next time it is that severe I will go in to the ER. Hopefully I will not have anymore bad pains until my appointment. I'm still curious if anyone else's blood pressure drops extremely low when they are lying down. Thanks for all of your support. It is so nice to have people to talk to about this Quote Link to comment Share on other sites More sharing options...
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